Friday, May 14, 2010

Round 2 - Day @%$#

Hello everyone, as you can see from the title we have not been through transplant yet but every step we take gets us closer. The latest big step was to release me back home for a couple of weeks. I got out yesterday at about 6 and have been relaxing at home since. It's quite a transition. I had what felt like the best night of sleep ever last night which goes to show how rough those hospital beds can be, especially after 6 weeks.

So with that said, please send all thank you cards to my donor straight here to the house rather than to the hospital. Address is:
1557 Amberleaf
Costa Mesa CA 92626

Its pretty amazing how many thank you's have already come in so please don't slow down. He is going to be shocked when he sees the geneousity of this group of people. I'm amazed just about every morning myself when I see the new cards roll in. It seems neverending and I would love to keep it that way. We just need to have them sent here for the next couple of weeks.

The next peice of big news I have for you is that Evey and I will be moving forward with our marriage on the original date of the 15th of this month. Yep, you do the math and it means we're getting marrried on Saturday, and we can't wait. We decided we're not going to let this sickness control our lives, so we're going to have a small ceremony here at the hospital...and postpone the big reception for when I get better.

SO... thanks for reading and enjoy the weekend.

Thursday, May 6, 2010

Round 2 - Day - %&&*!!

Hi Everyone
Well, I finally got my appetite back (thanks to a wonderful drug called megestrol aka megace) which has been great. I am also able to eat outside food and drinks. I have had a couple of trips to McDonalds and Coco's thanks to my great friends. The food here at the hospital sucks so this is the only way I will get through it.
I got moved back to the 3rd floor yesterday (Weds) which puts me right back to where I started. Just waiting for the pneumonia and lung infection to continue to get weaker at which point everything else falls into place; I will need another bone marrow biopsy to see if I am still in remission then hopefully will get to go home for a short time, then come back for chemo and radiation and then my transplant.
As we move through these steps, we will keep you posted.
Love you all and thank you again for the support. Please keep it coming. Every single thought and prayer goes a long way. Take care, talk soon...

Sunday, May 2, 2010

Round 2 - Day - %@!!!

Hi Everyone- Just want to let you know that I am out of the ICU as of yesterday (Saturday). I don't have any memories of what happened, only what Evey and my family have shared with me. Thank you all for your thoughts and your prayers. The doctors are saying they still cannot figure out the cause of the lung infection. I will be doing more testing next week.
We will catch up with you soon on any more updates.
Thank you to all of you who sent thank you cards. You can still send them if you haven't already. We are just giving them to the bone marrow coordinator as we receive them.
Take care everyone...

What is Kurt's diagnosis?

AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.

Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.

This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.