Wednesday, July 1, 2009

Day + 251

So it's been quite some time since my last posting and I apologize for that. I must say it has been a busy few weeks, that's for sure. Much busier than it has been for me since this time last year. I've been living in the middle of 4 part hurricane. Moving home from San Diego to Costa Mesa, planning a wedding, going back to work full time and the cherry on the cake...moving into our new house from Costa Mesa to Costa Mesa. For the latter we bit the bullet and actually hired movers for the job. We just couldn't take it anymore. So as you can tell, busy is an understatement. All good stuff though. I just can't wait to be nice and settled in our new place. We absolutely love it, as does Floyd. So enough about that.

Since my last posting, I've been feeling well but have found myself on a roller coaster of fatigue. I haven't been exercising much because of everything going on, but I still find myself getting really tired at times. There are a few times a week where I will find myself literally falling asleep where I sit. This is usually around 6 or 7 at night, so I have to do my best to stay awake. If succumb to the dreaded evening nap, there is no way I'll get to sleep later that night. There are even times where I'll be out to dinner and falling asleep at the table. It just hits me out of the blue and down I go. I'll be honest with you though, I'll take that any day over the bouts of nausea or just the overall awful feeling days I used to have. Those days are the worst and luckily they seem to be down to just a couple of days a week as opposed to the typical 5 days a week. Those are the days that just tear you down physically, mentally and emotionally and also affect the people close to me. Cancer is a very contagious disease. Contagious from the standpoint that other people aren't getting what I have, but they are still feeling the pains of what I'm going through. All I can do is apologize to those loved ones, family and friends. After a year you'd be surprised at how worn down this makes you.

Speaking of which, I hit my 1 year diagnosis anniversary a couple of weeks ago and it came and went with very little recognition. The day before I was thinking to myself that it was a pretty significant day in my life, but when it actually came, I didn't thing about it once. In fact, it was only a couple of days later when I realized that it had already come and gone. I think that's a good thing though. I take that as me moving on with my life with other things growing in importance, while, cancer takes a back. What a year it has been.

Work has been great. It has been a little more difficult then I thought to get back into the proactive mode which is what a lot of what my job entails, but it is starting to come back. Not like riding a bike, but I definitely feel myself getting back in the groove. Working from home and slowly easing back into normalcy has been going very well. I actually feel more productive at home then I do in the office. Never thought that would be the case. Regardless, it has been a great boost for me both mentally and physically. Just keeping my mind off of cancer and feeling bad does wonders for the old noggin. Once again, I can't thank Keith and Rich enough for their flexibility in this whole situation.

US had a hell of a shot at shocking the world in the Confederations Cup, but just fell short to the mighty Brazil after going up 2-0 at the half. But they are just too damn good and put 3 on us in the second half to win it yet again. With all that said, hats off to the US team for taking down Egypt, Spain and putting together a great half against Brazil. Can't wait for the world cup.
Labs have been consistently good with my white cell count right where it needs to be. Docs are loving that which brings me closer and closer to being able to travel again. That will be the point where for me, things are back to as normal as they ever will be. Hopefully that means I can travel domestically in the next couple of months and internationally by the end of the year. Fingers are crossed.

Well that should just about bring you up to speed. Thanks again for reading and for the never ending and seemingly bottomless support. You are all amazing in so many way and I can't express what that does for me. Please take care of yourselves and have a great time celebrating our nations birthday this weekend. 3 day weekend...yeah baby. I haven't celebrated having a day off in quite some time and it feels pretty damn good.

What is Kurt's diagnosis?

AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.

Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.

This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.