Friday, January 16, 2009

Day + 86

The proverbial light at the end of the tunnel has arrived and my appetite is back. I can’t tell you how good it feels to be hungry again. How it feels to enjoy the food you are eating rather than trying your hardest just to keep it down. How nice it is to look forward to eating rather than dreading your next meal. It is so difficult to put into words how terrible this appetite thing is unless you have lived it or seen in first hand with someone you love or care for. And it’s amazing how this one issue just completely ruined me. Now that my appetite is back I feel like a new man. I am slowly putting weight back on but more than that, I’m just starting to feel like myself again which is something I have missed for quite some time. I’m sure anyone close to me can verify that. I feel like talking to people again, going out for walks, catching up on idol work that has been sitting around because of my total lack of motivation, etc. It just amazes me that all of those things are related to the fact that my appetite and just overall eating habits were so out of whack, and now it’s back and I feel like a new man.

On the medical side of things all is well. My blood counts continue to hover exactly where they should be, to the point that my doctor has now lowered my required hospital visits to one day per week as opposed to twice a week. If you remember I started out with going to the hospital three times per week, so this means things are on track on the medical side and progressing according to plan.

So that’s about it. Things are going very well and I feel great which is great news for Evey who now gets to take a break from trying to get food down my throat on a daily basis. Poor girl, but at least it’s over for now. It’s so funny how things can turn on a dime so quickly. I remember about 3 weeks ago I was meeting with my doctor and told him with no joke in my voice that I truly felt like I was falling apart. I had no appetite and was losing weight, my feet absolutely killed me due to a condition caused by chemotherapy where the nerve endings in my feet get all messed up, I had zero motivation to do anything and my personality just seemed like it was turning dark. This was 3 weeks ago. He looked at me, we addressed each “issue” I was experiencing and he told me “One morning you are going to wake up and you will just feel good. There is no explanation around it except that it will happen”. At the time that meant nothing to me given the state I was in. At that point in time I seriously had forgotten what it felt like to feel good, or even average. It’s a terrible feeling when you can’t even remember what it’s like to feel average. Well, I’m happy to say that I am there and that morning has arrived and what a great morning every morning is when you feel like this. Whether it’s short lived or this is my road going forward, I don’t care. I am living up these good times and loving the fact that I feel like Kurt again. Take care everyone and we’ll talk again soon. Look for me at the Laker game tonight. I’ll be the one in purple and gold.

18 comments:

Anonymous said...

Hi Kurt,

I just love reading your blog, but especially when you're feeling good and more like your old self.

I am being updated on another "friend's" progress who has just recently had her bone marrow transplant, and it sounds to me as if you are making an amazing recovery. She has not responded quite as well as you did, but she's very optimistic, just like you have been all these months. You have both got such positive attitudes which I think contribute a lot to your recovery.

I'm so proud of you and continue to pray for a total recovery in the very near future. It sounds as if you have a treasure of a girlfriend.

God Bless Kurt -
With my love -
Peta

Anonymous said...

Great to hear my friend that you're feeling better. Try a Carne Asada burrito from any of the number of mexican stands down there (robertos, alihandros, etc.). That'll put at leat 2 lbs on you in one meal! Take care man and great to hear such news. Again, you are truley an inspiration to us all.
tomr

Anonymous said...

hey so good to hear the good news
I hope you will stay good (and won't bugg Evey any more:)))

love you both very much
Kety

Anonymous said...

Hi

I will be your neighbor when you come to Costa Mesa. I am new to your blog. So will be doing some reading up! Just wanted to say "hi" and wish you well.

Anonymous said...

Kurt,

Great to hear you are eating again. Makes me want to bake you cookies!

Carole L

Anonymous said...

It's good to hear the really positive turn is here. Thoughts and prayers from the east coast continue and keep the updates coming....

Hope all is well.

JF

Anonymous said...

Hi Kurti,

schoen, dass sich alles zum Guten wendet und dein Apetitt zurueck ist! Dann kann der naechste pork knuckle ja kommen ;) Hoffentlich bis bald, liebe Gruesse aus Bayern,
Birgit & Andy

p.s. plz say hi to Evey and the family!

Anonymous said...

I was delighted to read your blog today, Kurt. Its been some time since I last wrote but your Mom has been keeping me updated on your progress and you and she have been in my prayers daily. She's a heck of a lady and Mother and has suffered much through this ordeal, but now it seems like everyone's prayers have finally been answered. The hell you've been through is finally over and like you said, the light at the end of the tunnel is finally in sight. I applaud your bravery and wonder if I could have handled this intrusion as you have! Keep up the good work and I look forward to having a beer with you in the near future!

My thoughts are with you and Mom.

Roger

Toni said...

Welcome back Kurt! We are so relieved to open up this latest message and read that you are feeling better than ever! Enjoy this time with Evey getting to do what you love most. We think of both of you often and really hope and pray for remission to stick hard. On this end of the world, it's been great weather, so good that once Spring hits I'm certain we'll be trying to board a plane somewhere a lil icy. We would love nothing more than a reunion with you and Evey somewhere down the road. In the mean time, keep blogging and enjoy filling up that appetite!

Love,
Mike & Toni

Anonymous said...

Hi Kurt

It was wonderful to open up your blog today and hear all this good news. We are so happy for you that prayers are being answered and that you're finally making a turn down the road to recovery.

Your positive attitude and courage have been absolutley amazing. You are truly and inspiration to us all.

Enjoy that wonderful San Diego sun and that beautiful beach.

Mr. & Mrs O

Anonymous said...

I wish all of us could have been there with you guys to watch the game yesterday...

Hey Steve, go Steeleeeeeeers :D

Anonymous said...

Hi Kurtis!
Welcome back.

Anonymous said...

SWEET NEWS TO DAY +86
Glad to hear that the old Kurt is in the House!

I hear IN/OUT calling real soon

Keep the faith you are ion the road

Jeff

Anonymous said...

Wow Kurt, what a tough ride, but so happy things have taken a turn on the right direction. Christine and think about you guys daily, and still can't wait for you to meet Grant. He is starting to get more stable with his immune system etc, so we love to see you guys sometime soon. In the meantime we will continue to pray for more good news coming your guys' way!

Marc

Anonymous said...

Hi there Kurt,

Happy to read the positive update and that you are feeling like yourself again.

Take care,
Gary B

Anonymous said...

Kurt -
What great news!!! So glad you are feeling better and back to yourself. Baby Mathes is doing some flips & kicks for you! Hope to see you and Evey soon.
xoxo- Cathleen (& baby m)

Anonymous said...

Hi Friend,

What a great update!!!!!

So good to know that you are back and feeling life again!!!!

Take care,

Liz and Billy

Mike Estey said...

I hope you have been able to take some of that good feeling and hit the water! are you able to get wet yet bro? I'd be happy to take you if/when you can!!

What is Kurt's diagnosis?

AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.

Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.

This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.