So go ahead and chalk up another round of chemo. Finished my last bag of round two on Monday night with again, minimal side effects. I got hit much harder this time by fatigue, but not much of anything else. I'll take having to nap a couple of times a day over the alternative any day. So again, I feel pretty fortunate to have made it through another barrage of chemo without having to deal with all of the negative effects that usually go along with it.
As you probably read from my last blog, my hair is completely gone...I'm bald... and it's a trip. There is no question I look like a mutant, but the benefits totally outweigh the negatives. Upkeep alone is reason enough to shave your head. No more bed head which has come in real handy with all of my fatigue. I just pop out of bed and I'm good to go. Throw some water on my face and I'm a new man. For those of you on the fence, I highly recommend it...that is if you can get past the fact that you look like a Martian. If I can get past that, so can you. In all seriousness, it still is a bit shocking when I see my bald noggin, but I am quickly getting used to it so it should be nothing in no time.
As far as tests and results go, we are still about a week away from finding out if my brother Steve is a bone marrow match. We are all waiting very patiently for that one. In the meantime, they already have everything they need from me, so they are going through the non-family donor database now looking for possible matches so they have options beyond Steve just in case we may need to go down that path.
I should get results in the next 2-3 weeks from the chemo round I just went through. They are going to wait a little bit longer on this one and let the chemo do it’s work. The end result here is to get into remission, so that is what we will be focusing on.
I am lucky enough to get to go through yet another spinal tap tomorrow. They want to take a look at the amount of pressure my spinal fluid could be putting on my spinal chord. I thought I was the lucky one to have two of these things done. Just imagine my surprise when they told me I get to have yet another. I tell you, there is nothing like having a 4 inch needle shoved into your spine…3 times. Wow, I really am lucky.
So that’s about it everyone, not much else to report on. Thanks for reading and writing. We'll catch up tomorrow.
Tuesday, July 15, 2008
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What is Kurt's diagnosis?
AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
19 comments:
Hi Kurtel,
Just to let you know that I'm with you all the way! It sux that you're having to go through all the needle prodding but you're a pro now, and I never hear you complaining. As I've said before, you're truly an inspiration to all of us out here! Keep up the good work!
See you soon, Sweetie, and I love you very much.
Mom xxx
Hi Kurt
Your Mom has every reason to be so proud of you. You are truly amazing and such a inspiration to
me.
Before you even get use to your bald head it will be growing back. Unless, your like my Mom's friends son who shaved his and grew to like it so much that it's been that way for 20 years.
I pray everyday that round two will do the trick and that Steve will be your match.
Mrs O
Kurt-
Glad to hear you are through round 2. We are reading everyday to check up on you and to know how we can pray for you. God willing, Steve will be your bone marrow match. You're definitely having your patience tested in all of this, huh? Love your positivity!
Andrew & Heidi Lucero
Hi Kurt,
Kim told me what you are going through and I want you to know I am thinking of you and sending you positive thoughts!
Take care.
Leslie Barker
Hi Sweetie, You're probably even more gorgeous as a martian. You're a cutie no matter what. Buth then I've been in love since you were 15 Remember when Eric and John shaved their heads? They weren't cute. I'm jealous I just shots in the eyeball. Have a nap for me.Love John's Mom
Hey Kurt,
Happy to here the second round is over. I looking forward to hearing that you have kicked the sh-- out of these cancer cell.
I would like to request a picture.
Talk to you soon!
Glenn!
Hey Kurt-
Congrats on completing round 2!
Did you watch the All-Star game? Quite the marathon.... Since the AL pulled it out again, your Angels can have home field advantage for the World Series.
My wife accidentally shaved my head 2 months ago.... The upkeep was nice, but the whiteness of my melon was startling!
Take Care bud
Hi Kurt,
With the 2nd chemo round over, and Steve being tested for a match, we are anxiously waiting to hear the good news. Marisa & I enjoy reading your comments together, your amazing Kurt, keep up the fight. Your parents are both very proud of you, as we all are.
See you soon......
With Love and Prayers xoxo
Tante Alice
Love and Kisses,
Tante Alice
Get a little sun on the dome and I'm sure you'll be just fine-- per my previous note.
So you are on your 3rd ('This is') Spinal Tap eh? I hope your Doctors first name isn't Nigel or you might be going for your 11th one (it is one louder isn't it?) at some point. But maybe you can get a black T-Shirt with your actual rib cage, spine etc on it in green. But if he asks you to "smell the glove", I suggest not.
I'm w/ Jerry on the All-Star game... at least our Angels will have home field advantage. :) That was a great (but loooong) game/ and I only picked it up at the 7th inning.
Glad you're listening to your body and getting in those naps- your body knows best so listen to it.
Let us know if you need more stuff to combat any bordom.
Tom
KT, just found out what going on with you and I want you to know that I'm in your corner as always, my friend. I plan to get info so I can come see you soon, after all, we need to set up the next back yard pig roast. (I missed the 1st one but will not miss the next!) As for the clean shave, I say that you are in good company. (you may need to work on your tan a bit to match my smooth look!)
You are in my families prayers and remember...
I want to grow up to be just like you, Kurt. (see you soon.)
Rufus
Hey Buddy,
Congrats on getting through round 2! Hey if it any concelation I am loosin my hair to but I blame genetics!:) You are rocking this thing, we are all proud of ya! We promise to come see you soon, I had a cold and then Kacie did so I did not want to get you exposed to that so now that we are back up and running we will be down there soon. If you need anything let us know and we can bring it down with us. I will coordinate with Van.
Mikey and Kacie!
Sup Kurtis,
Busy day... no time for jokes! Nice work on round II. Don't forget that Rocky didn't win in Rocky I either.
And with that, some Rocky quotes:
You're the Man. You're number one. The Champ, the best of all time. Girls love you - Men, old people love you. Young people love you. You're the best. You're the Man, and he's yours. He's yours, he's yours. This bum shouldn't be in the same ring with you. I want you to show him who you are tonight. Show him who you are tonight. Stick him!
Do you like having a good time? Then you need-a-good-watch!
I see fine. I see like a Beagle, or something.
and lastly...
You're gonna eat lightnin'; you're gonna crap thunder.
That's all I got for today!
Hi Kurt,
Your Mom and Mrs. O are correct...you are an inspiration to everyone in your life and you bring out the best in all of us. You are an amazing person, as is your Mom. She is an awesome Mother, awesome Friend and awseome Individual...the 2 of you go hand in hand!
Hugs and blessings,
Michele
Hi Kurt!
So glad to hear that things haven't been going so well and that your spirits are up. That's the way to kick it! Positive vibes and good karma go a long way when you're fighting a battle.
You have our prayers and best wishes with you....from all of us - Bob, Sara, me and the rest of the crew.
P.S. If Floyd needs a place to hang....I'm sure Captain wouldn't mind...hmmm at least I think he wouldn't.
P.S.S. Can you believe that Alstar game...15 innings!
P.S.S.S. I posted this on the wrong day. Woops!
I am sorry Kurt that you have to have another spinal tap ... I can some what relate with having to have one and I agree, it sucks! Sending you good thoughts!
Glad another round is behind! Bald or not, you will always be a handsome guy!
Hugs,
Tracy and Family
Kurt,
I just got word of your situation and I'm pulling for you! We need to get you back to some serious surfing soon when you are ready.
Hang tough bro !!!!!
Chris Insley
Hey Kurt:
Just got off the phone with Van, he's on the way to Denver this evening. I called to ask him if you could have visitors, as I'm coming down to Southern California at the end of the month and I'd like to stop by and personally give you my best wishes.
I'd love to hear that word "remission."
Wood (Van's Dad)
Hey Kurt!
Glad to hear round 2 is over! You are so brave. Mike and I want to come visit very soon- we are finally done being sick. We think about you everyday and know you are one step closer to remission. Can't wait to cheers to that. See you soon.
-Mike and Kacie
Just got in from having drinks with Suzanne and, Oh my gosh can you believe you came up in conversation?!?! :) Just wanted to send a late night shout out to you!
Sweet dreams!
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