Friday, July 25, 2008

Thursday, July 24th, 2008

Happy birthday big bro and Paulina. I bet the two of you never thought you would celebrate your birthdays with 10 people crammed in a hospital room in La Jolla. Well, it's all about the people at the party so it was a great time. I hope you enjoyed it. Steak and Guinness on me when I get out of here, maybe a few...of each.

So I wanted to give you all a bit of a deeper dive into the information about the transplant donors. I met again with the doctor today and the news is really good. Apparently I was a perfect 10 out of 10 match with 15 people in the database which was a first. The doc said he had never seen anything like it, so what was initially bad news with my brother's non-match turned into great news with the unrelated match. They now have the luxury of fine tuning the match with three extra pieces of criteria...gender, age and blood type which brought us down to a short list of 3 people. To make the situation even more ideal, these three donors have already gone through the 3 weeks of pre-transplant tests so from a timing perspective, it couldn't be better. Good stuff all around.

So what I need to do now is get into remission. It's that simple. If round 2 puts me there I could be looking at a transplant start timeline of 6 weeks which would be absolutely phenomenal. If I end up needing a 3rd round to get into remission which is a possibility, that timeline could be pushed out by a month or so. But to be quite honest with you, that will be a very easy month knowing I have 3 "perfect" matches waiting for me when I do eventually hit remission. For now focusing on a round 2 success, the donor situation made a round 3 scenario that much more tolerable.

As far as my condition goes, things are good. I'm really enjoying my short but effective morning workouts with the weights and I have had very little all around discomfort. I still get headaches every now and then but those get taken care of pretty quickly with the assortment of remedies they have stocked up down here. The worst part about this whole situation is not being able to read a book outside in the sun breathing in fresh air. That is the number 1 thing I miss most, but I know those days are right around the corner.

Thanks for reading everyone, take care and be well.

21 comments:

Anonymous said...

Habedere Kurtl,
i am very happy to read this really good news. Great!!!

Over here, everything is going well, on the weekend we probably go for Annafest, another nice beerfestival to grab a Schweinshax´n and some Mass. We definitely will have one more on the good news.

Machs guad,
Daniel

Anonymous said...

Greetign Kurt !
I am really happy with the good news. i am more inspired on how you are handling this whole situation. You have support on both sides of planet. Keep up the good fight. Those days of reading a book outside are surely just around the corner.

Look forward to continued progress

Anonymous said...

Servus Kurtl,

you just put a big smile on my face! I`m really happy to hear the good news. I´m always a bit nervous opening the blog. But you made my day! I will give my best tomorrow at the beer feast and have some mass for you too :)

Mach weiter so!
Andy

Anonymous said...

Griass di Kurtl,

these are the news we want to hear!!
We think of you day by day.
Greetings from the Jahn's.

Stay strong
Veronika

Anonymous said...

Ejla Kurt
very pleased to hear good news
and it's amzing you've got so much perfect matches. Looks like your optimistic atitude was worth it.

I wish you were here now there is a Motovun film festival and it lasts fo 5 days-Monday to Friday
I'm going to sleep at my cousins- Dina, Franko, Ana, Ivana, Lucija, Martina i mića Emica i Danijel will alsio be there- you've met them when we played socker at that horse ranch.Mihaela is back in NY -went to see her boyfriend-I don't know if you met her she's all around all the time so...
It makes it even worse that you cant even be outside and we are frying here-it like in hell but at least I work in Rabac every day so I can go swimming. I'm sure you'll come here very soon and be able to enyoj a beautifull sommer you're missing this year...

Kety

Anonymous said...

Did somebody say Guinness?

That's great news Kurt... Lot's of postitive energy sending your way that round 2 will do the trick and that steak & Guinness in the sun "Does it really get any better than that?" comes sooner than later. Take care Brother...

Tony

Anonymous said...

Fantastic news!!!
I thought one Kurt was enough... but we have three others out there? I wonder if they like Santora's hot wings too?

"did you say hello Warren?
about a million times"

Chris said...

Great News! AIE brother.

Unknown said...

Very Good! Fire Chief's here we come.

Can't wait to meet the other Kurt's

Steve

Anonymous said...

Wish You Were Here
Pink Floyd
Pulse (Live)

On the iPod right now.

KGplus3 said...

Hi Kurt! Long time no see. Kelli's friend Kristin here. Just wanted to tell you I'm thinking good thoughts for you & happy to read some good news. From one cancer survivor to another soon-to-be, I wish you well. ;) Kristin

Anonymous said...

That is fantastic news bud!!! It was great to see you earlier this week, I will get the Hero's DVD down to you soon.

Stay strong brotha!!!

Lisa Barger said...

Hi Kurt & Evey!

I am so glad to hear things are going well. I just found out about your diagnosis and I was blown away, but I'm so glad to see you guys are handling this so well, I can't even imagine. We will be praying for you Kurt!

Love,
Lisa, John & Elianna

Anonymous said...

Hey Kurt:
Wonderful news. I'll talk with Van this weekend and I'm sure he'll be thrilled. Again, I'm traveling to Southern California next week and hope to stop by and give you my personal best wishes.
Take good care,
Wood

Anonymous said...

Kurt,

I thought you were unique in this world ... come to find out there are at least 3 just like you out there. What a relief!

Glad to hear about the matches. It made my day.

This coming week should prove to be pretty hot, so being outside may not be as great as you think.

Everyone behind the dutch door is thinking about you.

Leo says hi.

Missing your smile in the office. Sure will be glad to see you back here.

Carole L.

Anonymous said...

GREAT news! We could not be more excited for you. It looks like, in your case, when one door closes...three more open!!! It's all your positive thinking. Take care.
Kelli (Kev's sis)

Anonymous said...

Hi Kurt

Great news couldn't ask for anything more positive. Three good canidates how wonderful. It's truly amazing how many wonderful people are out there willing to help those in need. Hopefully you'll be able to meet this amazing person.

Mr. & Mrs. O

Mike Estey said...

hey Kurt, ran into Evey & Van at an Ingram gig and they told me how great your doing!! keep up the focus on healing bro and you'll be in remission in no time! I'll do my best to top that 3" needle one soon :-)

Anonymous said...

Hi Kurt

Well tonight was the night we all witnessed the scalping of Kevin. The whole family gathered ours and Eryn's to cheer him on. Carol Eryn's mom actually did the scalping. He is now offically a member of the team chrome dome. Way to go TEAM!!!

Thinking of you everyday with positive thoughts and prayers for your remission.

Mr. & Mrs. O

KevinCourtney said...

Kurtis,

Great news.

I knew you had a strong mind and heart before, but reading these posts and getting a sense of how your handling this takes it to another level.

Continued strength and healing...

Can you believe zeek has a little girl?!

Amazing.

Kevin C

Anonymous said...

Kurt,
I am amazed by your strength and courage.
I am so happy to hear the good news on the bone marrow matches and know it will be soon for you to be healthy and home.
Take care,
Kenny N.

What is Kurt's diagnosis?

AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.

Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.

This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.