Hi everyone,
well, that Friday came and went and and still I sat in the hospital. It wasn't until the middle of the next week that my prayers were answered and I was send packing. That was by far the most painful and frustrating stint I have ever had in the hospital. The walls seemed like they were closing in on me every day. I just couldn't deal with it for some reason. Regardless, that's all over now and I'm home.
it hasn't been that most enjoyable trip home though. From the first day I left I have been battling with some pretty brutal stomach nausea. One of the good things about being in the hospital is they can pump you with IV drugs to hide all of that stuff. At home you have to use meds which seldom really work so you are basically stuck dealing with it. I've tried them all too, and they seem to work sporadically. And when I say sporadically, I mean sporadically. Having this nausea really ruins just about everything. I don't want to talk to anyone, I don't feel like going out, I quite honestly don't feel like doing anything. I just want to lay on the couch and watch tv. That way I can unplug from the rest of the world and deal with the nausea. Trust me, it's a crappy exhistence and it drives my crazy, but it's the way it is right now.
My weight is way down aound the 145 level and I can't seeem to get it to go up. I am eating three solid meals a day and for some reason it doesn't make a blip on the scales. I'm at least happy I have my appetite, but again, the stomach nausea affects that to the point when I'm really only eating partial meals, but that should still get me out of the 145 range.
Outside of that I am spending about 2-3 days per week n San Diego either meeting with doctors, getting some sort of test performed on me, or getting a supplement of some sort...Magnesium, Potassium, etc...
There are a lot of complaints here and there should be, life isn't all that great right now with these stomach pains, but in the grand scheme of things, I'm doing alright. I'm back home with my family, I'm breathing and walking and waking up every day so with all that said I'm doing alright. My goal now is to try to figure out what is going on with my stomach and fix it. We have run some pretty crazy tests in te few weeks to try to figure out what's going on and they all come back saying things look good. I guess thats a good thing but on some level I'd like to find something so we can address it.
Take care everyone and thank you for reading. One of the things that suffers as a result of this stomach pain I'm having, is updating this site. I'm serious when I say I really don't want to do anything, I'll try to be better at that because I do feel good once I do write. I hope you are all doing well and and I appreciate your support.
Friday, March 11, 2011
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What is Kurt's diagnosis?
AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
16 comments:
Kurt-
You do whatever you need to do to get by. We would all love it if you would update this blog on a daily or even hourly basis because we care-- but we all recognize that sometimes you need to conserve and focus your energy on doing what you need to do.
Take it a day at a time buddy and we'll take it a day at a time right along with you.
All our best,
TB + Family
KT
Keep slugging.. even if it is from the couch! You gotta do what you gotta do.
We are with you all the way amigo
The Rickmans.
Kurt,
This may seem crazy, but try fennel seed tea. Many years ago my daughter was 9 months old and sent home from the hospital because she could not keep anything down, and the doctors had tried everything. My very German mother-in-law brewed her a cup of tea and she slowly started to recover. she is now fine with no problems. All you do is fill a tea infuser with fennel seeds and put into a cup of boiled water, it stays very lite in color, then sweeten to taste. drink as often as you can. The doctor later told us the fennel seed has healing properties. the entire family has used this remedy for any digestive problems. I pray it can help you.
Thinking of you
Donna and Cousin John
Kurt,
Good to hear that you're home! Stay tough and get through that nausea. Write whenever you can. All the Best to you and Evey!
RM
Hi Kurt,
Thanks for the update. Sucks that you are having all of that nausea, hope they figure that out asap. We are all thinking about you. Take Care, Michelle Sablan
Hang in there buddy. Hope you start feeling better soon. Sorry to hear about the stomach pains. Hopefully the NCAA tourni will take your mind off it for some time. Take care man and hope to hang out soon when you feel up to it. Tom & jao
We never stop praying for you!
We love you Kurt!
hugs from the gattis family
Kurt - hang in there my friend. Glad you're home for March Madness, enjoying it from your couch with your dog!! I like Donna and Cousin John's fennel remedy - hope it helps - ginger has some of the same results. Stay strong. Always thinking about you. Liz and Billy
Kurt
Glad you finally got to go home & spend more time with your family. Hoppe everything goes well from now on and thet your weight will get better too. I wish u could top by for some prsut & our croatian food :D
Thinking of you
Love u and Evey
Hope you'll come to Croatia again <3
Miss you
Kate
Hey Kurt,
Great to see you writing again man. Your courage through all of this is awesome! Look forward to future posts. Glad your back home with Evey.
Your Friend
Vito
Kurt
We're so glad your home but sorry to hear that you've been having such a hard time. We wish we had a remedy for you. We pray for you everyday that you will soon be feeling much better.
Mr. and Mrs. O
Hey, Kurt!
Just checking on your blog. Sorry about the nausea, buddy, but I hope you find some relief, soon!
Thoughts and prayers, my friend.
johncodd
Kurt,
Thanks so much for the update, you've been on my mind. I'm sorry to hear about the stomache issues but am happy to hear you are finally in your home with Evey & Floyd.
Hope you get some lbs. packed on soon too and that you are able to get over the nausea.
Big hugs to you guys.
Lorie Littler
Kurt,
Just praying and waiting to hear from you soon. Thinking of you often, loving you alot.
Donna and Cousin John
Kurt -
Still praying and hoping that you are feeling quite a bit better than you did on the day of your last post.
Hopefully, you have more strength and have managed to get your appetite back.
God Bless, Kurt -
Thinking about you constantly -
Lots of love -
Peta xx
Hey brotha, sorry I've never commented but know I've been following and praying for you. Actually I just saw the comment button aaannnd I had my moms prayer group pray for you because I dont think he listens to me. I've told Evey I'm close by so if you ever need ANYTHING gimme a call.
Much Love
-Scott Lopez
p.s. you're one tough motherFer
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