So De Ja Vu has nothing on this situation. I' have been in the hospital now for a total of 10 days, 9 since I started chemo, and nothing has come back to me as far as getting used to anything. Every day I wake up it's like waking up in a nightmare. I don't know why, but I seem to remember being in here before and being ok with the situation. You know what I mean...this is my situation so I just have to buckle down and deal with it. Well, not this time. Like I said, I wake up every morning, close my eyes and just wish I wasn't here. Yeah, it's that bad. I don't want to say there was novelty attached to it last time, but there is clearly a change from last time to this time, and it has misery written all over it. I'll hopefully at some point settle in and get used to it, but for now it is a daily battle to keep my head up and just take the situation for what it is. OK, now I feel like I'm rambling so let me stop, I apologize for that.
9 days since chemo began, 4 since it stopped and I'm feeling pretty lucky to say that I seem to have gotten through it pretty easy. I have had some difficult mornings where food looks absolutely disgusting, but no throwing up which I am so happy about. Throwing up is pretty much the worst it can get for me. For some reason, I just can't handle it so I have been lucky to not have to deal with it. This is ususally how it goes for me though. I get through the chemo pretty good but then a sneak attack will hit me a couple of weeks later and down I'll go. None of that really matters at this point. I just want to get the hell out of here and get back to my house, my bed, my dog and my life. Living in a 15x20 foot room for a long period of time is not conducive to good mental health. With that, I'll stop complaining about my living conditions. You've heard it all before anyway right?
One thing that hasn't changed is the morning visit by my full doctor team and the tag along group of about 6 students. It gets pretty cramped in here when Evey and I are trying to wake up and in walks 8-10 people asking how you are feeling, looking to see if you're breathing right, feeling your ankles to see if they are swollen, looking at your tubing, checking the pain and nausea scales...it's just nonstop nonsense and is every morning. The good part about this part of the day is that I get an update on my cancer situation and an idea of what's coming up. As of this morning, my white cell counts are at 0 which is exactly where they need to be. At this point, I need to wait it out like always and let the chemo do it's work, which is what it is doing. In about a week or so they will do another bone marrow biopsy and see if I am still in remission. Those results will determine us going straight to bone marrow transplant or waiting it out, letting my cell count situation strengthen.
So here is the breakdown: In about 5 days we will do a bone marrow biopsy. Assuming my body has reacted favorably to the treatment and the biopsy comes back negative, we will start the process for transplantation a couple of weeks from now. The actual transplant date will be a bit less than 3 weeks from now. My donor has been a superstar as always and has pretty much opened up his schedule to whatever we need. The other thing I am trying to do is get a few days home before the transplant. Not sure if the doc is going to go for that or not, we shall see.
So that's pretty much it for now. Same story, different dates. It seems like this is becoming a recurring nightmare, but third time's a charm and that's how we're treating it. Yes, we're in a pretty crappy place right now but it's nowhere Evey and I haven't been before . Luckily for me just negotiated being able to take a quick walk outside of my floor and into the lobby. Doesn't sound like much but trust me, when you're couped up like this, every step outside helps. I just need to get these tubes out of my arm and sleep in my own bed...then and only then will I start to feel better. Take care everyone and thanks for everything. We'll keep you posted.
Wednesday, November 17, 2010
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What is Kurt's diagnosis?
AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
14 comments:
Hi Kurt, you definitely sound discouraged and have every right to be, but i also see you've got a lot of fight left in you . This absolutely sucks and its terrible that you have to do it again, but let's count on #3 being the one. Keep fighting, thanks for the updates and we're all praying for you & Evey. Lynne
Sending lots of love your way guys.
Tony
Hang in there buddy! I love you guys man. Praying for you to get back home soon.
Looking forward to seeing you soon.
Shawn Brown
Kurt thinking of you. Hang in there buddy. Will be back down in a couple of weeks.
Glenn!
Hi Kurt
Boy do you have everyright to complain with everything you've been through. None of us can even imagine what it must be like. We continue to pray that this next test will show remission so you can quickly move on to your transplant. Then it will be out of that little room and back home for you to rest and recover. Stay strong and know that so many love and care for you and are thinking of you daily.
xoxoMr. and Mrs. O
Hey my friend - hang in there! With your strength and mental fortitude, you will find MORE strength, just when you thought you were at the end! You're a fighter. You're in our thoughts and our prayers and we will be praying for all the best in the next few weeks. Stay strong!!
Liz and Billy
YOU ARE A BULL Kurt! You can do this!! I am praying for your remission bro!!! You can get through this cleanup set and make it out the back buddy - Our family will continue to keep you and Evey in our prayers.
Estey
Third time IS a charm! You have some pretty stubborn and strong German guardian angels watching over you, and they won't let you give up. Always thinking of you guys, love you cuz. Marisa & Josh
Hi Kurt,
You are in our thoughts and prayers. Let's kick this cancer out of your body for good and get you home where you belong. Your strength is amazing and inspiring. It is crazy but after all these years at Ingram Micro I have never had the priviledge to meet Evey. What a wonderful partner you have found, she seems so strong and supportive. You can do it Kurt, just another hurdle to get through.
Stay strong, Michelle Sablan
Hi Kurt,
I have read a couple of your blogs. It's rough times, I know what your going through. By hubby has stage 4 cancer and has been going through similar treatments. Or what's sounds similar to me. Low blood counts, chemo, etc. I hope you stay possitive and keep fighting. Your loved dearly and only the best wishes for a full recovery are being sent your way! Keep your head up and keep fighting. From a blast from the past! Kelli Boyer
Hello Kurt! We continually follow your progress here in Manila. Keep up the fight! You and Evey constantly have our thoughts and prayers.
- Aizah Crissy Claire Lyra
Kurt
I'm sending you a "virtual" box of GOOD SPIRITS. It's a plain and simple box on the outside but it's filled with an endless supply of GOOD SPIRITS. The box is small so it can fit iin a clenched fist, a small pocket, on a bed tray or nightstand. It's somewhat magical... Just visualize it and it's there with you! Take it out often; open it and let the GOOD SPIRITS fill you. Don't worry about using them up.... You have unlimited refills!
Don't be skeptical my friend.....go ahead, close your eyes, picture the box, lift the top. Do you see them? Its like a beautiful rainbow arcing from the box to you.
Fill up. Tomorrow will be a better day.
With love, Mother Bowman
kurt,
to triple up on the other comments- you complain all you want! - get it out, whatever makes you feel better and it certainly doesn't bother us to hear the reality of the situation.
it may seem long, but you'll be home soon and this phase will be behind you. keep fighting, keep angry, keep doing whatever you need to get through this part. you'll be back home soon.
all the best - thinking about all of you.
TB + fam
Kurt, I told you this a while ago… you are one of the strongest people I have ever met, a natural leader and German tough! Not sure if you remember, but back in the day we used to always say “life goes on!”.. This final, succesful round will pass and you will be back home soon! My thoughts are with you.
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