Why does it always seem to be that I get sick when there is a major soccer tournament going on? I'm not complaining, but it's a great coincidence. The first time I was diagnosed with Leukemia, the European Championship was going on. When it comes to soccer tournaments, that would be second to the World Cup. So two years later, my relapse hits after 500 days of remission and the World Cup starts. Luckily for me I'm a huge soccer fan because it's giving me something to do every day. Trust me, when you're idol like I am and your productivity has come to a grinding halt, you need stuff like this to take your mind off of what's going on in the real world. Thanks to the World Cup, I can disconnect for 6-8 hours a day and not have to think about test results, Dr. visits, blood counts, "procedures", whatever...I even sometimes forget about my headaches. You can't argue with the power of sports. Having three teams to root for is a bit tough though. From the beginning I've been pulling for South Africa (Where I was born), Germany and last but not least, the US and A. Need a big day tomorrow to salvage this World Cup. All the marbles are on the table for both Germany and the US. It's going to be quite a day of soccer. Unfortunately, South Africa got knocked out, but they had a great World Cup and totally blew away their expectations. And how sweet was it to see them send the French packing with a loss? Sorry if you like the French team, but they are a huge mess.
So enough of the stuff that has absolutely nothing to do with my current condition. I've been heading down to San Diego once or twice a week. It depends on what's on the calendar as far as tests, labs, etc. Lab results have been solid since I was released but seem to have dipped a bit in the last week or so. My doctor says it's nothing to worry about so I'm not worried, but I'm very interested to see what they show tomorrow. White blood cells are in the 7,800 range which is good, but that number is about 5,000 lower than the prior week. That much of a dip always raises my eye bros, but again, if doc says don't worry, I'm good with that. All of my other counts are well within the "good" range as well, so from a blood work standpoint, no worries.
My energy levels and overall feeling changes from day to day, but my as long as my blood counts are good, I've got to believe that everything behind the curtain is good. I'm not going to lie to you...it sucks when one day you feel great and you've got a ton of energy, then the next day comes around and it's the complete opposite. Don't cry for me yet, when the bad days hit, I can just take it easy, relax and watch the World Cup. Not a bad way to deal with a rough day right? Luckily for me those days are far outnumbered by the good days. It's amazing though, a bad day can make a week of good days a distant memory. The fact still remains that even on my bad days, there are people out there having days that are much worse than mine, and that doesn't only apply to illness. Thinking about that knocks me back into alignment pretty quick.
For those of you who have been wondering what's next, my timeline of events is starting to get a little more clear. I have labs tomorrow which should hopefully show an increase in my WBC count. Then on Friday I'm back down in San Diego for a chest CT scan (Catscan). This is a test I am really looking forward to. It's pretty much the only way my doctors can tell how the Pneumonia is doing. I definitely still have it by the simple fact that I continue to cough up junk all day long. Another thing they can do is listen to my back with the stethascope while I take deep breaths, but it's not even close to as good as the CT scan. So that's on Friday with the results hopefully coming back that same day. I've been on this new medication using an IV which I'm taking specifically for the pneumonia, so I'm really hoping these results come back showing a lot of improvement. It's been a huge hassle for both Evey and Tommy to hook me up with the IV and then 90 minutes later, disconnect it. I can't do it myself so they are the lucky ones who get play Florence Nightingale and take care of me, which they are doing a great job of. I'm a lucky guy for sure. So back to upcoming stuff...a week from Friday I go back down to San Diego for a bone marrow biopsy. This is the one that will either give me the red light or green light for transplant. If I'm still in remission, I get readmitted to the hospital on July 8th, go through four days of light chemo and get my new bone marrow cells on July 15th. That would then become the new Day 0, and the count begins again from there. I'f I'm not still in remission and the leukemia cells decided to show their ugly faces, then it's back to the beginning and they hit me with some sledgehammer type of chemo. I'll leave that where it is for now, but the next couple of weeks are going to be very busy and very heavy. I'm just happy I have my wife, family and friends around me to help me get through it.
All of the above, from a timeline perspective hinge on the fact that they collect my donor's cells on July 14th. Actually, this is a great opportunity to thank all of you who sent him thank you cards. I am not kidding or exaggerating when I say the stack of cards was easily 7 inches high. the response from all of you was unbelieveable, but I shouldn't be surprised by that at all. You all have proven to be the best support system anyone could ever beg for, so when it comes to stuff like this, nothing surprises me anymore. With you all in my corner on the support side, and my donor in my corner for the medical part, I'll be able to get through anything. In fact, just when I thought the donor couldn't kinder or more amazing, I'm proven wrong. I was just told that he had a vacation planned on or around the transplant date. When he was told of the plans with the dates, he moved his vacation to accomodate the procedure. It's just crazy how cool he is. I can't wait to get my butt to Sweden, learn his name and buy him a beer. It may be a while, but if he is good with meeting up, Evey and I are on a plane with whoever else wants to join, and Sweden here we come. I just shake my head in disbelief every time I think about what he has done and sacrificed for me. It literally brings me to tears and I just hope that one day I'll be able to show him how much I appreciate what he has done. This is an amazing person, and once again, I must have an angel on my shoulder because nobody deserves this kind of luck.
I know I have no idea how many of you are out there pulling for me and supporting me, but if I could wrap my arms around you all and pull you in for a big bear hug, I would. And yes, that includes all of my friends out the in the Philippines. Sorry I forgot you guys on my last message but it goes without saying how much a love you all. As you can see, I have a pretty crazy few weeks coming up, but have no doubt that all will go well and you guys will be right there with me either physically or in spirit. We'll get through this and be on the road to transplant and recovery in no time. Thanks for reading everyone and I hope you are smiling that summer is here. Even though I have to be careful with the sun, I still love it and couldn't be happier that we've turned the corner and we're headed right into the sunny months. Take care everyone, enjoy the outside and stay tuned for more updates.
Tuesday, June 22, 2010
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What is Kurt's diagnosis?
AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
10 comments:
Hi Kurt,
Thanks for the update. I couldn't help but get a little teary. You write straight from the heart and think the blog would be a great novel. We are all pulling for the green light! Your in our thoughts and prayers. Enjoy the rest of World Cup fever dude! Go USA!!!!!
Cheers, Toni & Mike
Really good update, Kurt. It seriously made my day.
Keep it up, bro.
Gary B.
Hi there Kurt,
So good to read that your spirits are still up.
I am praying that the pneumonia will be gone in time for your next transplant, and that all your blood work will be in the 'normal' range, so you can once again start to accept your new bone marrow.
You are a fighter and as I said before, your positive attitude will get you through anything.
So glad you are enjoying the World Cup soccer - it's something to keep your mind off those pesky medical issues.
We love you, Kurt - take care -
Peta
Go USA!!! I will be thinking good thoughts over the next couple of weeks. You obviously have an amazing support system and most of all AMAZING courage and strength - you will get through this! I'm pulling for you and I will keep praying that everything goes your way.
Cheers,
Tina
Hang in there bro. Let me know if you need anything,
SMF
Here's a big bear hug right back at ya Kurt.. Love ya Buddy...
Tony
Kurt, you are my hero!
And yes, you do have so a lot people in your corner, praying for you and sending a lot of positive vibes. I know you have many angels around you...
Keep the positive attitude and stay strong; with the love and support of everyone you will pull through!
Give my love to your beautiful wife.
Lots of love!!!
Fluffy
Way to go Germany in the SWC! That must make you feel so good, Kurt!!
Hope you are feeling elated and happy and ready to confront all that awaits you in the next few weeks.
Thinking about you Kurt, and hope you and Evey have a wonderful 4th.
Lots of love - Peta
Hi Kurt,
Thanks for the update.
I sent a thank you card to the hospital, but a day or two later was when you were discharged. The card was returned to me a few weeks later. I'd still like to send it - what is the best address to send it to?
I'll be definitely be thinking of you these next few days. I hope all goes well.
Christine
Glad you have something to keep yopur mind "off" for at least a couple of hours...
Keeping my fingers crossed that you...NO! I know you WILL get the green light!!
Thinking of you
Love Kate
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