Tuesday, April 20, 2010

Round 2 - Day - %&^*!

Hi Everyone- sorry it has been awhile since I have written. It has been a really rough couple of weeks battling the pneumonia, pleurisy, fevers, stomach pains, lung infections, and trouble breathing. I finally have good news to report that at Day 27 (Sunday) my white cells finally decided to come back. This means that the doctors will be doing my bone marrow test hopefully at the end of this week to see if the last chemo put me into remission.


On another note, we got news about my donor. Apparently he removed himself from the national bone marrow registry after he donated his stem cells for me a couple years ago. He decided he didn't want to do it again. However, my transplant coordinator called the transplant coordinator in Sweden to have her let the donor know it was for me and he said, "I will do it again for him". This was such incredible news. My marrow coordinator said it would be a very good idea if we could gather thank you cards from my freinds and family for him.


SO... this is where all of you come in. If you would like, please send a thank you card to me for my donor and we will put them together and have my coordinator mail them to him. You can say that you are my friend and appreciate what he has done for me (both in 2008 and now) and whatever else you want to say.


Please mail the thank you card to:

Thornton Hospital 3 West
Kurt Thallmayer Rm 359
Mail Code 7608
9300 Campus Point Drive
La Jolla, CA 92037-1300


Once we receive them, we will put them all together and have them mailed to him. The fact that the guy wasnt going to do it all again and is doing it for me is incredible- and he doesn't even know me! If you are a donor, it is 100% voluntary and this guy is amazing for going through it again for me.


Thanks for reading and for all the comments, they really help... Thanks again for taking the time to mail the thank you card. It means a lot to me that everyone has been so supportive.

18 comments:

msarv said...

I can't tell you good it is to hear from you Kurt. Our thoughts and prayers are with you every day, and those days between posts seem to get longer every time! We will put those energies into praying for good results at the end of the week. And on your request, all I can say is I hope that the hospital is geared up for a scene from Miracle on 34th Street! Love you guys.

Marc, Christine and Grant

Tommy said...

WOW!!!...there really are some incredible people out in the world!

You and Evey are on that list too!

Anonymous said...

Kurt,

It is so good to hear from you. Wow!!! the news sounds great, you sound much better and that is a blessing for all of us. Your donor is a miracle himself. Be strong,stay positive.
Donna and Cousin John

Chris O said...

Learn something new everyday - I had to look up the word "pleurisy". Sounds painful and has too many vowels for my taste. You must be glad that's over. Glad to hear you're feeling better.

Toni said...

Extremely happy about the good news on your counts going up and your donor being on board for another great give!! We will write a big note of thanks to your donor. What a blessing, you are being looked after Kurt, all is going to turn out really great for you. Keep your spirits up k dog!

Love,
Toni & Mike

Anonymous said...

You are such an incredible person. You have been in our thoughts and prayers. God bless you and your family!
Love,
Michelle & Joe Wood

Anonymous said...

Kurt,
When we write our Thank-you notes are there any rules? Are we not allowed to use your names or anything we are not supposed to talk about?
Thanks
Donna and Cousin John
drh5072@verizon.net

Kelly Dyer said...

Kurt, I was very happy to read your post today! You have been through things that are incomprehensible and I truly know if anyone is going to kick the A#$! of this disease, it will be you! My card is in the mail tomorrow!

Love, Kelly D.

Unknown said...

Whats up buddy? I am amazed by your spirit but not at all surprised by it. After all, this is the Kurt I know. I am sure you will beat this thing just like you did before ... My thoughts are with you habeebi!

Your donor is such an incredible person. Its great to see these instances of selflessness. Cant think of anyone who deserves it more than you.

With love and best wishes
Saif

Anonymous said...

Kurt,

I was really sorry to hear Kim give me the news your having to go through this again. But what a gift from God you have received in this donor!! Andrew and I are keeping you, Evey, your family and this donor in our prayers.

Heidi Lucero
John 3:16
Matthew 11:28

Anonymous said...

That's such great news Kurt and I'm praying as well for good results at the end of the week. That is such a great idea for the Thank you cards going to your donor (what an incredible human being) and you can expect a Thank you card coming from us.

Tony

Anonymous said...

Kurt,

Prayers are sure working for you. I was so happy to hear that your donor has said yes to another bone marrow transplant for you. How wonderful.
Sending prayers and good health to you.

Love
Joyce Dyer

Kate said...

I'm so glad to hear there still are such good people out there..
So happy for you, keeping our fingers crossed and thinking of you...hope everything goes well..

Lots of love to you and Evey

Kate

christine liu said...

Kurt,

I'm so glad to read that your counts have gone up. I hope that you are feeling better and that all goes well with your upcoming test.

That is great news about your donor! What a wonderful person to do this for someone he has still not met. You have many angels in your corner for sure. Good karma perhaps?

Thank you for your continued updates throughout. I will be sending my card shortly as well. :)

Anonymous said...

Kurt, I am so happy to hear the good news. Your donor is an angel and so are you. I pray for a speedy recovery and good health throughout your life.
Kathtryne Oh

Anonymous said...

Hi Kurt!
I started to write my thank you card and found myself struggling to put into words how much you mean to me. I'm so lucky to have you and Evey as friends. I think about you both constantly and hope to see you soon. The boys will be sending pictures they've drawn to your donor...hope he likes pirate ships.

Love you both,
Staci
xoxo

Kim Connelly said...

When Scott heads down to visit he will bring the cards we have put together!
No need to write anything else because u already know how much you mean to us!
xoxo,
K&R

Anonymous said...

Hey there kurt..You energize my being just by me reading your blog. I really admire your perservearance and vigilance in your fight. You are an inspiration to me and I've never met you, only heard a ton via scott and kim. keep it up mate. with this donor, i really hope it's all downhill from here and back to surfin' by summer! Melissa S.

What is Kurt's diagnosis?

AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.

Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.

This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.