Monday, June 1, 2009

Day + 221

So here I sit over 220 days since my transplant, and it's just amazing to look back and reflect on the road so far. So much has happened since then, and even more since this all started close to a year ago. Chapters that were opened are now being closed, and its happening quickly. It started with us moving out of the beach house in San Diego a few weeks ago, followed by us moving back into Evey's place in Costa Mesa...and it continued today with me going back to work full time. I'll be honest with you, I have had my thoughts, more like doubts about going back so early. They have been swirling in my head over the past few weeks, but after today I know it was the right call. No doubt I will have some difficult days to get through in the upcoming weeks and months, but life would be too easy without difficult days. I am just really lucky that I work for a company that places value on it's associates well being, and I have seen and experienced that personally from the top of the org chart on down. I can't speak enough about how supportive, flexible and understanding everyone has been and it really has had a lot to do with my recovery. Not having to worry about your job or messing up your career while going through something like this just makes the whole situation that much easier to get through, and that is why I have been able to go back to work within a year of coming down with this illness. Rich, Keith, Chris and everyone else, thank you!

From a risk perspective, I'll be ok. I am going to slowly ease into it by working from home for the first couple of months. I'll be going in for meetings, presentations and things like that, but for the most part I'll be working from the house. These were the stipulations laid out by my doctors to avoid any unnecessary risk to my immune system while it still is building back up to normal strength. The office environment can be a petrie dish of bacteria and infection which your immune systems can usually fight off. Mine wouldn't stand a chance if truly tested...so until then I'll be keeping my distance. It's too bad because it was really cool being back in the office today. A lot of you might think being out of work for a year would be a great thing, but I can tell you from experience it isn't. Cashing checks with the statue of liberty on them and not feeling like you’re contributing to anything gets very old very quickly. I know, I know, I have had my hands full fighting off the cancer, but that doesn't take away from the empty feeling you get by not working. It eats away at you after a while. These are the thoughts I've been contending with over the past couple of weeks. One thing I didn't want to do was rush back to work because I was bored, but getting the green light from my doctors and being able to slowly adjust back in was reason enough to pull the trigger and close the "Leave of Absence" chapter of this story. And I must tell you it feels pretty damn good. I'm really looking forward to becoming a normal contributing citizen once again.

On the medical side of things all is good. My counts continue to stay within the very good range, which is where they have been for the last month or so. The really good news is that I have been feeling good along with that. I have had a couple of days here and there where things haven't been so good and life has been tough, but for the most part I have been feeling great and slowly feel like I'm getting back to my old self. I unfortunately have a pigment thing working on my face where it looks like I have a sun burn. This is really just a side effect of the medications I'm on in conjunction with the bout of rejection I went through a couple of months ago, but to be honest with you, I could care less. I'll take feeling well and having good counts all day long if means I have to cruise around with a seemingly sun burnt face. After you've gone through things like body changes, weight fluctuations, hair loss, skin rashes, etc, having a bit of a red face is laughable. One of the many lessons I will take away from this whole experience will certainly be how unimportant the physical appearance is compared to that person’s character. Through the amazing actions I witnessed from the people who supported me through all of this, I could see the true beauty of what's inside and conversly how unimportant the outside is. Ok starting to ramble, somebody please push me off the soapbox.

Now comes of course the Light the Night plug. I hope to see you all there because it is going to be quite an event. Here is the link once again for those of you looking to get more information or donate or both. http://pages.lightthenight.org/ocie/OrangeCo09/Floyd1

Thanks for reading everyone and take care of yourselves. Until next time...

15 comments:

natasha said...

What a great post! I am planning to be there for LLS Light the Night 100% for sure and raising lots of money. Wishing you and Evey the best in being home back and planning your wedding. So much to look forward to.

al said...

Welcome back to work!

Anonymous said...

Glad to hear your first day back went well and happy to have you and Evey back in the area.
J and Chris

Anonymous said...

That's awesome that you're able to get back to work Kurt! I'm sure you've been anxious to get back to some of the routine of your life before cancer and will feel great to be in the mix that way again. Looking forward to making Light the Night this year too! It's on my calendar and I have no weddings conflicting with it this year! :)

Shannon

Anonymous said...

Great to hear you're back in the swing of things Kurt! Getting back to work somehow doesn't seem like a great thing when you look at it from a typical point of view, but reading your post brings things back into perspective. Keep up the great work man and its great to see you feeling well.

tom r

Tommy said...

work is going to make Fridays that much better!...and Saturdays and Sundays...Good to see daddy is bringing home the bacon again..lol!

Anonymous said...

Great to hear that you are back on the work clock.

Looking forward to the Light the Night Walk.

Take care Kurt.

Gary B

Mr and Mrs O said...

Hi Kurt

Wow!! Going back to work is really looking at the light at the end of the tunnel. We are so happy for you and Evey that your back in the OC bubble. It's such good news that you've been feeling better and even out playing golf.

Mr & Mrs O

e that your back in the OC bubble and that you've been feeling better.

christine liu said...

Congratulations Kurt. This is great news! :)

Kate said...

I am so glad 4 U. I hope u can go back to work as soon as posible. Glad to hear you're moving back.

We miss you a lot
Love Kate

Michelle Sablan said...

Yeah Kurt ! I am so glad to hear that you are doing well ! Really happy to see that you are back working ! Wow.....
Take it easy, Michelle

Anonymous said...

Hi Kurt,

I'm so happy to hear that you are doing so much better. There are seasons or chapters in our lives that fortunately we can close the door on, and in your case a much more exciting time is ahead. Things will only keep getting better for you, and what more wonderful occasion to plan for than your wedding! Exciting times are here for you Kurt and I hope you enjoy every minute of every day.
Thinking of you always -
Lots of love and hugs -
Peta

Marisa Smith said...

Kurtl - Wish we could walk along side you at Light the Night. We are so happy you are feeling better and cannot wait to see you again at Jason's wedding. Enjoy moving into your new home and planning wedding details. There is so much to look forward to!
Love you both - Razel & Josh

Toni Cap said...

Hey Kurt,
Just wondering how you are doing. You have not updated your blog lately and I've been thinking about Evey and you. I'm sure you're busy w/ getting back to work & wedding planning, but I enjoy your blogs so much I had to check in with you.
Hope you are doing great!
TC

Kate said...

hey
It's been a month and still no word..:)
what is happening..did you and Evey elope or...
update us a bit please ...

We miss you very much
Love Kety

What is Kurt's diagnosis?

AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.

Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.

This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.