Hi everyone-
once again, I'll start by saying thank you all for your messages of support. I can't get enough of them. So it was a rough couple of weeks that I wrote about in my last posting, but I'm happy to say that those days went away soon after that time and it has been smooth sailing since then. I have had a couple of tough days sprinkled in there which will always be the case, but this has been a good stretch of pain free days. Well, that's not all together true. Right now I am more sore then I have ever been in my entire life...and I mean from head to toe sore. So bad that I got out of bed this morning at 11:30am after waking up at 7:30am. Not because I wanted to lay in bed for four hours, but because I seriously couldn't physically get up. I was laughing at myself because I was in so much pain.
Now hold your sympathy because it has nothing to do with my Leukemia. For the first time in over a year I went and played 18 holes of golf with a couple of old friends. I figured I'd be sore, but had no idea it would be anything like this. I guess when you swing the club 118 times with muscles you haven't used in close to a year, you're asking for trouble. Yes, 118 times. To add on to my stupidity, I thought it would be a good idea to do some push ups later that night. That turned out to be a horrible idea because it just added on to the pain in my upper body. It is seriously even difficult for me to sit here a type this message right now. Not even kidding when I say this is by far the most muscle pain I have ever experienced. All I can do is laugh and be happy with the fact that I was able to get through a full round of golf. I'm really looking forward to getting out there again even though I stunk up the place.
From a medical perspective things still remain on track and couldn’t be better. My white blood cells are at 5.0 with my hematecrit jumping up a bit to 36.7 which interestingly enough shows what my endurance should be. Right now I’m at about 70% of my total endurance which is up a bit. My ANC is at 2.6 which is still good but a little lower than I like. ANC shows how susceptible I am to infection. It takes a little more into consideration than just straight white blood cells. On top of all that, my doctor continues to cut back on my immuno suppression medication which is a great sign. Those are the anti rejection drugs so that just tells me my doctors are feeling really good about the fact that my donors stem cells are going to stick with little or no fight from my body.
So it’s all good news my friends. Thank you again for staying up on my road to recovery. As you can see things couldn’t be better on the medical side…the important side, and I am feeling great, aside from my excruciating muscle pain, but again all I can do is laugh about that. Please take good care of yourselves and we’ll catch up soon.
Thursday, April 2, 2009
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What is Kurt's diagnosis?
AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
15 comments:
yo great news buddy-- 118 is a good round I think. :) You'll be shooting near 100 in no time. Haven't seen you in a while but you are on my mind and I'm very glad things are moving in the right direction. Keep smiling my friend!
Steve
Hi Kurt !
Great to hear you were able to get out and do some golfing! Good for you. Glad that you have had a good 2 weeks. Keep up the good work !
Take Care, Michelle
Hi Kurt,
Michelle again...I am laughing...I guess my two girls log into Yahoo and when I post it uses their name. So sometimes you will see Carly and other times Gabbi ! Crazy !
Take Care, Michelle
FOUR!!!!!!!!!!!!!!!!!
hi
I am so happy for you
keep getting better=)
Say hi to Evey
also I can't wait to see you againg
you must come back!!!
Miss you both so much
Kety
Great News Kurt. We are very happy things are going so well. You know, it turns out that I have some private golf lessons with the pro at Seacliff. Wedding gift from somewhere? Take care man.
Chris and J
Hey, sounds like the time I took up hoola hooping to deal with the ever expanding waste-line and the first time out, decided to go for an hour..........what???? I hadn't hoola hooped since the 3rd grade - much like you, I wasn't moving too much the next couple days - of course Billy had to note that I might've wanted to ease into the new fitness program......smart ass...
Well, all I can say is that the fact that you are able to laugh at your plight is a VERY positive sign and it's only going to get better!! It's amazing how for granted we take it all - Billy is notorious for thinking he's still 15 and can do everything he did then.....hi ho
Good to read all the fantastic, progressive news!! Here's to your next round of golf - maybe take 9 the next time out :)
Much love, Liz and Billy
I was laughing out loud reading this entry, especially the 'push ups'. Crazy man! I am thinking of you every day. Thank you for your honesty - I am moved beyond words! Lots of love to you both!
Nadia
xoxo
Kurt - Playing 18 holes is a great sign of recovery! Me and my brothers are happy to see the progress! And BTW - at 118 you can beat all three of my brothers!
Keep smiling Kurt!
Carlos
valerio80@cox.net
That's good news Kurt. 118 is way better than I would have done playing golf. Keep it up and maybe this thing will be finally behind you. I'll see you soon.
-Jason
Big Kurt! Great to see you getting out to play golf, even though it sounded like you suffered for it. 118 still beats me, so don't make that sound so bad mmkay. Next time may want to hit a pitch-n putt.
Great to hear you're doing well man.
take care
Tom & jao
118.... What did you get on the back 9?
:-)
Hi Kurt. Definitely not the smartest idea to do push ups after swinging 118 times, but very funny. It's so good to see you suffering from " normal " issues. Congratulations! Lynne
Hi Kurt!!
I love hearing that you were able to get on the course for a FULL round of golf! It's been ages since I've seen you, or posted, but please know you and Evey are always in my thoughts. Happy to hear the good news. Miss you guys!
Lots of love,
Abbie
So...I have been doing something here and there since you began your fight. Today someone asked me what I was doing...and they thought that I should share. So here it is. I google the day that you are + on, and see what I come up with. For example today, being April 13th, you are DAY +172. So I google day 172...this is what I came up with... http://blog.ghostfish.net/?p=1256.
Not sure really why I have been doing this, but I am glad that I have. I have read some interesting things.
Hope all is well and keep up the fight!
-Melanie McKowan
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