Man, I just can't tell you how stoked (happy) I get in reading the messages back to me. It’s pretty unreal for me to see how my experience has impacted so many people’s lives. I'll leave it at that but thank you all very much again.
So believe it or not, it’s been 150 days since that unbelievably generous man from Sweden, the angel on my shoulder, hooked me up with his stem cells. I just got my chymerism test results back today and all is still good, which means if you look at a full sample of my bone marrow, 100% of it is made up of my donor's marrow...and that is exactly what we want. It has been that way since they did the first test, four times ago and it remains constant through day 150 which is pretty cool.
I just wish the chymerisms report, the blood test results, the bone marrow biopsy’s, etc. all meant that if they were good then I felt good, but no sir, it does not work that way. I did have a few good days this week, today being one of them, but unfortunately the balance of the week didn’t go so well. A few of the days it was the same old muscle soreness and tightness, where going down the stairs is an adventure in itself. And the other two days I felt like I had flu symptoms which I haven’t had to deal with for a while. The whole deal…shakes, sweats, feeling just awful. Like I said, the whole nine yards. I did take my temperature and didn’t have a fever so all was fine. It was just another small stretch that I had to get through. And yes, if you picked up on the fact that I took my own temperature, and not my wife to be Evey, you were right on. I have had to do without her priceless and invaluable support and love for the past three weeks or so. Let me be fair though, she was nice enough to come home for a couple of days between trips. I’m just kidding of course. As much as I would love to have her here with me, she is really enjoying her time in the Philippines. I’m just happy she gets to experience the unbelievable qualities of that place first hand, not having to go on my word. Anyway, I got off on a bit of a tangent there. It’s certainly tough having her gone for so long, but I get to have her back in a few days so I am looking forward to that.
It was a rough week but honestly, reading through what you guys wrote really helped me get through it all. It also helps knowing that my bad days have nothing to do with my long term recovery. As horrible as those days are, knowing that all I have to do is power through them with the knowledge in the back of my head that it’s not holding up my recovery, it just makes it easier to deal. Another thing that makes it all easy to deal with, for which I feel so lucky and thankful for, is my job. I had a quick informal meeting with my boss this last week when I popped into the office, and he basically told me as he always has, that my health is the most important thing and Ingram will do whatever necessary to ensure that not an ounce of stress will come from work. Of course everyone knows that my health is the most important thing, as it should be with everyone, but it’s great to hear that from the company you work for. It’s just another reason why I am the luckiest person in the world for the support system I have. Thanks Rich!
So that’s pretty much it my friends. I thank you all once again for the unreal love and support you never cease to send my way and I wish you all a great week. I know I am going to have one, even if I do have a couple of rough days thrown in there. 150 days baby, let’s keep this train rollin’…
Monday, March 23, 2009
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What is Kurt's diagnosis?
AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
20 comments:
We are sending Evey home to you relaxed and tanned. The Manila Ingram office was full of really nice people and they all asked about you. You have a whole other country of people pulling for you! We heard about some silly stories of trips past. Well now Evey has some good stories and photos of her own. Also congratulations on the niece...so exciting! Greetings from Manila Penin and cheers with our San Miguel Lite.
Hi Kurt,
Thank you for your message via Andrew. I just hope you remember that we all care about you so much, and that whatever we can do to help, we will. From the time I found out about your battle, I have kept up to date, spending hours reading on your blog how much you have impacted other peoples lives. No wonder you have so many friends who love you and are rooting for you all the way. I'm so proud of you and how you have handled yourself throughout this ordeal. As so many people agree, you inspire us and make us realize that our troubles are so insignificant, and not to take even one hour of our day for granted.
I hope we will get to meet Evey some day - she sounds like an angel.
Please let us know if there is anything you need - we would LOVE to help you.
Much love always -
Peta
Hey Kurt-
Was glad you got a chance to stop by work - It was really great to see you again! Hope to cya again soon.
Take Care!
Hello Kurt,
You and your Mom are in my prayers every night. I can't believe how quickly you are recovering and I want you to know that I read your blog regularly. What a great support group you have and I'm happy to be part of it.
I can't wait to meet your little niece....your Mom tells me she is a little angel. I have a little angel myself whom I spoil every chance I get!!
Keep your spirits up Kurt, and I'm looking forward to seeing you again one of these days.
Roger
Hi Kurt
We're so glad to hear that all your tests look great. it must be such a relief to you each time you hear the results.
We hate to hear that you're still having a lot of bad days. You must really appreciate the good ones.
Hang in there and know that we continue to pray for you.
Mr & Mrs O
Surfer Dude
As Kramer would say Giddy Up
Bob mentioned to me that you were in the office last week, which was great to hear!
Awesome news on your counts on all fronts as well but sounds a little like a rollercoaster day to day from feel like a million bucks to the bad days and they tooooo will become less and less over time
Next winter Mammoth Mtn for sure to do some ripping
Keep getting stronger and stronger which know you will
Cheers
jeff
It was so good to see you, Floyd and Evey last night. I really like your new beautiful, Secret Service style car. When are you going to let me drive it? I am happy that you are doing better, soon all those aches and pains will go away. See you on Friday. Love, Sonia
A man placed an ad in the classifieds: "Wife wanted."
The next day he received a hundred letters.
They all said the same: "You can have mine."
Kurt, I was watching CSI-NY last night and one of the main characters couldn't concentrate on his job because he was thinking of a name for their new baby boy, and after naming quite a few names, he came up with KURT and one of the other guys who was German said it meant COURAGEOUS, and I just thought hmmm, how appropriate. I bet you've always known the meaning of your name? You're in the battle of your life and you've come out on top, showing so much courage and optimism. We're so proud of you!
Just wanted to share that with you!
Love always -
Peta
I can't believe it's already been 150 days! Wow...so glad to hear that all the tests are coming back as they should be and you have healthier feel good days in site! By the way...I'm loving how you refered to Evey as your "wife to be"!! That's music to my ears! ;) So cute... Love you guys! XOXO!
Shannon
Hi Kurt
Just thinking about you. I get regular updates from your mom and am happy to see are fighting this disease tooth and nail. I look forward to seeing you at the wedding next month.
Take care.
David
So glad to hear all of your tests are coming back so positive. I always read up. We miss you and Evey! I feel like it's been forever since we've hung out. We'll have to plan a dinner together soon. We are getting the top to our dining room table this Wed. so we'll have to have you up for dinner.
Take Care,
J
We have been thinking about you and happy the recovery is going well, very sad to hear that it's such a tuff road!!
Would love to get together for dinner sometime soon.
Love always Pat and Karan.
Sooooooo glad to hear the results of your tests are good. I'm sorry to hear you still feel icky at times but lets just figure it's getting it all out of the way before your wedding day!
I'm also thankful for you that Ingram is so supportive. I've missed working there for that exact reason. It's one of the only companies that had such heart and was a huge corporation at the same time. Very rare.
Continue to focus on your health and your future w/ the woman you were meant to be with! So excited for you two.
Take care & God bless you...
Lorie (Geckle) Littler
Hi Kurt, my name is Ruth and my husband had a stem cell transplant 6th June 2008 from his brother. So far all his tests have come back as 100% so lets hope you keep going just like him. He has however had a number of side effects, like loss of balance in both balance organs and some nerve end damage throught the treatment. But as he keeps telling people - at least he is still here to tell the tale. So chin up and you will keep going.
Hi Kurt, my name is Ruth and my husband had a stem cell transplant 6th June 2008 from his brother. So far all his tests have come back as 100% so lets hope you keep going just like him. He has however had a number of side effects, like loss of balance in both balance organs and some nerve end damage throught the treatment. But as he keeps telling people - at least he is still here to tell the tale. So chin up and you will keep going.
Hi Kurt! After all my chemo treatments were finished and i was so happy, along came this nuisance pain in every joint and muscle. They were calling it post chemo arthritis. One day i woke up with it! Believe me, it was bad. I literally had it for exactly 3 months. As quickly as it showed up, with no warning, that's how it left me. I woke up 3 months later a new woman!Maybe your pains are similar? I don't know but keep up with your fantastic spirit! See you later! Oh yeah, congrats on your engagement! Tana/ AKA Eryn's friend
A woman scanned the guests at a party and spotted an attractive man standing alone.
She approached him.
'My name is Carmen,' she told him.
'That's a beautiful name,' he replied, 'Is it a family name?'
'No,' she replied. 'I gave it to myself. It reflects the things
I like most -- cars and men.'
'What's your name?' she asked.
He said, 'B. J. Titsengolf'
Hi Boss!
We miss you!! stay strong..
From your Manila OSG family.
I'm jealous....golf. I remember the game but it's been awhile. Excellent score considering everything...actually sounds like a score you might see on my card.
Glad to hear things are going well for you and that all your other scores (tests) are doing well also. Take care. Talk to you soon.
Cynthia
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