Hi everyone. First off, I'd like to thank everyone for their heartfelt condolences about Van. Every one of us is feeling it and I know that everything that has been said and written over the past couple of weeks has helped me.
On the medical side of things, everything is going extremely well. The results from my latest bone marrow biopsy came back in record time and could not have been better. My body is still in 100% remission and there is not a speck of cancer anywhere. There were no signs of immature cancer cells which could be an indicator that there is still a problem, but that looked perfect as well. All in all, the results could not have been better, and as a result they have said that I will not need another bone marrow test for 6 months. That is great for two reasons. The first reason is obvious which is these things are painful as hell and the longer I have to wait for my next one, the better. The second reason is the more important one. The fact that they can wait for six months means they have a huge amount of confidence that I'm good to go for a while and I have very little to worry about in the short term. That is a huge vote of confidence for my health as it relates to the possibility of me relapsing which the doctors are resoundedly betting doesn't happen.
I am feeling better overall. I'm still a lot weaker than I was two weeks ago but I feel myself gaining strength every day. I'm back to walking which is tougher than I thought, but I'm getting there. My legs just don't seem to work together the way they used to. I walk like a beat up old football player, but I'm hoping that with more walking things go back to normal. If I ever want to run again like I used to, that is going to have to get fixed. On another note, I seem to be past the Gastroenteritis which is really a fancy word for the stomach flu. No idea where I picked it up. It could have come from someone close to me who had it or possibly from something I ate. Doesn't really matter to be honest with you. I'm just happy to be past that nightmare. I don't wish that experience upon my worst enemy and I pray I will never have to go through that ever again.
My appetite remains strong and I've gained 12 pounds with more to come. All systems are go my friends and I can only hope I remain on this track. I'm feeling better but also have no illusions that things could turn for the worse at just about anytime. The good news for now is that people tell me I'm looking better and my doctors are telling me my recovery couldn't be going better. How much better could life be? Thanks Van, I couldn't have gotten here without you bro. I have a long way to go but things are looking good. Thanks for reading everyone and please take care of yourselves!
Wednesday, February 11, 2009
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What is Kurt's diagnosis?
AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
17 comments:
Awesome! Awesome! Awesome! Awesome! I am so excited to hear this news. I actually heard it from Evey last night and I am so happy for you! Well, happy for both of you actually to resume some normalcy of no hospitals, being back home and simply living live and doing what you love.
One thing I have continually thought since June, was we can’t take our health for granted and we can’t take our lives for granted. In a few short weeks, that thinking has hit me hard again with the loss of your dear friend Van. It still seems unreal.
Remission continues to be the best word that I read on your blog. We like R-E-M-I-S-S-I-O-N! So great to hear.
See you guys in a few days. Let's celebrate! -tash
Kurt-
So good to see you and to see you looking well.
Sorry about that horrific stomach flu. Then poor Evey to be out here with the bug too...
What great and uplifting news on your remission status. Keep up the good work!!!
Take care,
Love ya!
Ciao
A:)
Hey Evey and Kurt,
Just wanted to let you know I've been thinking about you two. I am so sorry to hear about Van...Lindsey has kept me in the loop...He truly was such a great person...I've only had the pleasure of meeting him a handful of times...but we had a great wine tasting trip a few years back in temecula...and I'll always remember him for that...
On another note, I am so glad to hear that your recover is going well...I think about you two often and pray that remission will be a word that continues to resonate...
Anyway, just wanted to pass on happy thoughts and let you know that I was thinking about you....
Take Care,
Natascha (Guillemot) Eickhoff
Fantastic update, Kurtis!
We continue to think positive thoughts for you.
Take care,
Gary B.
Kurt,
This is my first time blogging. And by the way, I just learned how to text recently. Gosh I need to get out in the world! Anyway, I have read every blog of yours since day one. Our cousin died last year of the same thing you had. It is so amazing to hear that you are cancer free and treatments do really work. Mike and I think of you all the time. We would have gone to Van's funeral but our aunt died the same weekend as Van. We had to attend her funeral.Please know that we get so excited to read how well you are doing. You are always in our thoughts.
Cathy Knight
Very exciting news. I too got some stomach thing and had Pat take me home after Van's services, my stomach was killing me and I thought is was stress from holding my tears back. So bummed I missed out on hanging out with everyone but it was the best thing to do. We need to go out and celebrate, we'll come down just say when....dinners on us!!!!!
love you both
Karan and Pat
That's great news Kurt! Kacie and I are thinking of you two! We hope to see you soon.
Mike & Kacie
Hi Kurt
What wonderful, wonderful news!!! We are so happy for you. After everything that's been going on lately you deserved to hear something so positive. Prayer's are being answered. Enjoy your weekend and celebrate.
Mr. & Mrs O
Kurt and Evey,
you haven't heard from me in awhile, but I have still tried to keep tabs on Kurt's progress... and WOW!!!!incredible, wonderful news. I never doubted it though. I have never known anyone who could keep so possitive in the face of adversity. As I told you before I admire your strength and the strength of Evey. I am sorry
I missed you guys at the Birthday Party, John said Kurt was looking good, so for now I will take his word for it, but I hope to see you guys soon.Keep up the good work, Mr. and Mrs. inspiration. Sorry to hear about your friend, Kurt.
Cousin John and Donna
Such great news!!! Chris and I can't wait to hang out again soon!
Love,
Chris and J'lene
Good Stuff, Super Kurt!!!
You have an army of fans inspired by your progress!!
Hope to see you soon!
much love,
Liz and Billy
KURT AND EVEY,
I CAN'T TELL YOU HOW VERY HAPPY I AM ON YOUR ENGAGEMENT - DAD, STEVE AND I ARE "OVER THE MOON"! EVEY, KURT HAS FOUND THE GEM HE'S BEEN LOOKING FOR ALL HIS LIFE AND I AM ETERNALLY GRATEFUL FOR THE UNBELIEVABLE CARE YOU HAVE GIVEN HIM OVER THE LAST SEVEN MONTHS, AND COUNTING! HE'S A VERY LUCKY GUY! KURTEL, EVEY HAS ALSO FOUND HER GEM IN YOU - YOU ARE A UNIQUE AND GENUINE GUY, AND I AM VERY PROUD TO HAVE YOU AS MY SON. YOU BOTH HAVE A WONDERFUL FUTURE AHEAD OF YOU AND I WISH YOU NOTHING BUT LOVE, GOOD HEALTH AND HAPPINESS!
SONIA, MY SISTER! WHAT CAN I SAY ABOUT US! WE'LL STILL GET UP TO MISCHIEF; OUR KIDS WILL STILL GIVE US INSTRUCTIONS ON WHAT NOT TO DO WHEN THEY TAKE US OUT; WE'LL ALWAYS BE THELMA AND LOUISE! I'M LOOKING FORWARD TO MANY MORE GREAT TIMES WITH YOU, BUT THIS TIME, AS A FAMILY!
KURT AND EVEY, I LOVE YOU!
MOM xxxxx
CONGRATULATIONS!!!!!!Finaly!! although I think Mickey will be disapointet to hear since he likes Evey so much!!!hahaha-just kidding.
We are all so happy for you.
Sorry I haven't wrote anything till now my net wasn't working + the phone bill for January came around 650kn-or about 130 USDso my parents flipped.(all because of facebook)...and I had two competitions and went out for VAlentines day (came hom at 5a.m) and I don't have my voice since thursday -so I had a bussy week.
Sorry again.,..,
good to hear more great news-You better train those legs so you and Evey can come play football again.
Congratulations once again
Talk soon
Kety
Hi Kurt,
I am so glad that things are going well for you. I love reading your blog, you really have helped me put my life into perspective...thank you so much for that.
You are always in our thoughts.
Take Care, Michelle Sablan
Great news Kurt!
KT,
So glad to hear about all the great news on the medical front. What fantastic info to hear! It sure sounds like you are now engaged too, so Congratulations to you and Evey... That is fantastic you have each found someone so perfect for the other and I wish you all the best!
Your story is one of inspiration and it also helps to keep things in perspective!
Enjoy bro and hopefully we'll see you guys soon!
Craig LaTourette
WooHOo!! I'm reading from the blog that you two are engaged now! Wonderful, exciting news! Congrats to you both! Kurt- Please give us an updated blog soon. I'm always checking in & wanting to stay in touch.
I think it was just Evey's b.day too so Happy Birthday Evey!
Best to you both!
Love -
TC
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