Hi everyone. I hope you all had a happy Thanksgiving. I know I did and it definitely had a different meaning this year given everything that has happened. It has always been my favorite day of the year for the simple reason that you can eat great food, drink, nap and watch football all day. And of course the Cowboy game just makes the day that much better. But before this year, I could never really answer the old, "What are you thankful for?" question. I don't mean to sound like I've taken my whole life for granted, because I haven't. I'm always thankful for the place I live and for the family and friends I have. It's very easy just to shrug that question off and say yeah, life is good and I'm grateful for it. But now, everything gets put into a different perspective and I find myself deeply thankful for everything, on a far different level then before. I could very easily be dead if not for the actions and support of many people around me. That is a very odd feeling to get your arms around. All day long I found myself drifting into weird reflections of the first hospital when I was sick but didn't know what was wrong yet, then going back to the conversation with my doctor where she told me off my diagnosis, then to my battles with the chemo and later the radiation, then thinking of the non-stop support from my family, old and new friends, doctors and nurses. The visits, the thoughtful cards, books and gifts to help me take my mind off of the reality and of the situation. All of those things were going in and out my head all day long. And it's funny, I think the only reason it was all hitting me all at once is because it was Thanksgiving. I guess that's the whole point of the day. And please don't think that all of these thoughts made it a bad day for me, because it didn't. It really did quite the opposite and made it not only a great and happy day, but a special day...and the Cowboys beating the hell out of the Seahawks keeping them in the playoff hunt didn't hurt either.
Ok, enough of that babble. Let me update you on how things are going with my recovery. So far, everything remains on track and the doctors are still very happy with everything they are seeing. My blood counts are still hovering right in the range they should be and I have been feeling great. Things have just gotten better and better for me since that first really bad week of me getting discharged from the hospital. My nausea is gone for the most part and food has been tasting really good. Because of that, my weight has been going up as well. I have gained about 7 pounds since I’ve been out and that will continue to go up for another 15 pounds or so. That should get me to my target healthy weight. I’m still walking just about every day and while I’ve been in Orange County I have been able to walk with Floyd which has been really nice.
On the cancer side, all is good as well. Every 30 days since the transplant, I will be getting a bone marrow biopsy done to determine 2 things. 1, are there any cancer cells in my body. 2, how much of my immune system is mine and how much is my donors? I got the results from the first part yesterday. My body, blood and bone marrow as of now is completely cancer free and has been since I entered remission. They were even able to do a deeper dive into some of the trouble areas where the cancer was more prevalent and grouped together. In those areas as well, they saw no signs of cancer. As you can imagine, it is a pretty stressful time between the test and the results, but to hear those words that you’re still in remission is pretty unbelievable. I won’t get the results of the second part until late this week or next week, but what I’m looking for is 100% of my immune system to be that of my donor. That means that it would have fully taken over my body and pushed out my own faulty immune system. We’ll see what the results show.
For now, I’ll continue to take my 35 pills per day, walk as much as I can and eat as healthy as possible. Seems to be working so far. The only downside of this week is that my girl is in NY until Sunday. That's alright, she'll be back soon and all will be right. That’s it for now. Take care everyone and thanks for reading.
Tuesday, December 2, 2008
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What is Kurt's diagnosis?
AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
11 comments:
Thank you Kurt for the wonderful reminder that we all need to count our blessings. I am thankful for your wonderful blog and all your inspiring entries. I'm so glad to hear of the great progress you are having. I hope the Cowboys will continue to make you smile. Take care and look forward to seeing you both one day in the future.
Kurt,
It is funny, but you probably don't realize how many people wait for a new posting on your blog.
And it is always great to hear words like "remission", "cancer-free", "feeling great", and "gaining weight".
To be honest, it brings me to tears just a bit.
Hope you know that everyone at work thinks about you and wishes you all the best.
Keep up the recovery thing. It makes us happy.
Maybe you could even come to the SD&E holiday get together (if we can find a date we all agree on).
Missing your smiling face.
Say hi to Evey.
Carole L.
Hey Kurt -- always a relief to get the new update and things continue to go so well for you guys. Christine and my "little reason to be thankful" had a similar effect on me as far as making this Thanksgiving and holiday season a bit more meaningful. Just a few more weeks for us, and look forward to introducing you and Evey to him or her. Looking forward to seeing you guys soon.
Marc
Hi Kurt,
I just talked to your Bro and heard the news.. I'm so glad to hear that all is going well my friend.. Happy Holidays to both you and Evey...
Tony
Very nice update! Keep up the positivity and you will be fine. I look froward to seeing you soon.
Have a great day my friend.
Steve
Always love reading your updates, especially when they are as uplifting as this one. It is really great when along a journey you receive many blessings, but even better when you have the opportunity and privilege to actually reflect on all of those blessings and be thankful for each of them. Glad you had a special holiday and so happy to read the news of you continuing to be cancer free. For that, I am so very grateful! love to you and to Evey.
Wow. Reading your blog makes me realize there's more to life than being thankful that the Raiders suck so bad that they get another first round draft pick. Great to hear your health is continuing to get better. You're definitely closing in on my number on super hero! Thanks for the uplifting blog Kurt and glad you're kickin butt.
tom r
Betsy is clearly an Amis now and no longer a Cave given the Cowboys comment. I just hope our Dad doesn't see it. Congrat's on all of the great news man. I am really happy and thankful as well that things are going so well for you. See you Saturday..
so glad to hear that everything is on track.....we are thinking about you and love reading the blogs to get caught up on your progress.
we love you both and can't wait to see you soon!!!!!
pat and Karan
the sacramento kings with the upset! i did not see that one coming but I'll take it!
Sacramento Kings - your 2013 NBA Champions!!
Great updated Kurtus!
I am so happy for you that things are going well. Keep it up my friend.
Gary B.
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