Thursday, November 20, 2008

Day + 29

I GAINED TWO POUNDS! Sorry for yelling but in my current condition, 2 pounds is huge and I'll take it. Greetings from the new beach pad, and a great new pad it is. On one side we have the bay with a bunch of boat docked on moorings right off the shore. Right across the bay there is a big hotel which you can hear music from on weekend nights, or at least that's where we think it's coming from. About 4 blocks directly behind us is the ocean. Our place is positioned right on the end of the Mission bay peninsula so we’re perfectly placed for both bay and ocean. It really is a perfect spot to get well and I am loving it more and more every day. Evey and I go on walks just about every day ranging from 1-3 miles so we have done a good amount of exploring so far. Just the other morning we were walking along the ocean side and saw a bunch of dolphins sharing waves with the surfers. I had to sit down on the bench for 5 minutes just to soak it in. It was an unreal feeling just knowing that this is where I’ll be living for the next 6 months. The only thing missing is Floyd, but he has visitation rights so we’ll be seeing him occasionally.

So again, I gained 2 pounds which is huge considering I am right now about 30 pounds underweight. My last hospital visit really took it out of me for some reason. I guess it could have something to do with the chemo/radiation combo combined with the fact that I had a new immune system introduced to my body. I need to keep reminding myself of that. Anyway, I am way underweight right now and my goal now is to put it back on as quickly as possible. My clothes don’t fit anymore and I feel like I look someone out of a prison camp. I feel like one of those skinny African kids on a charity infomercial, asking for someone to “adopt” me for the cost of a cup of coffee a day. You get the picture. I’m pretty optimistic I’ll put it back in pretty quickly, but I have a couple issues I need to battle through. The first is the bad nausea that hit me when I got discharged. I had it really bad for the first 10 days or so and it has seemed to pull back a bit this week, but it still comes and goes. Nausea just makes everything look and taste horrible, no matter how hungry you are. The other issue is my taste buds, or lack there of. The last round of chemo and radiation completely fried my taste buds so foods not only taste different, but they taste bad. Everything has a weird tinge that makes all food, no matter how much you love it, taste off. And after a couple of days of that, you just don’t want to eat at all. Luckily my taste buds have finally started to come back around this week. The doctor said it could take as long as 6 weeks so I am hoping they are here to stay and not just flashing in and out. We’ll see. So once I get past these two issues, which I already kind of am, I should be back on track to put this weight back on.

As far as the rest of my health goes, all is good. I feel much better than last week and my blood counts are still very good. White blood cells are at 3,600, Hemoglobin is at 10.6, Hematocrit is at 31.9 and platelets at 119,000. All are doing great but my platelet count seems to be dropping a bit. They are still in great shape but slowly going down…no problem at all. My walks are getting better and better and I feel like I’m getting more energy with every day that passes. It will be a while before I can back into a good exercise program, but walking for now is doing wonders.

That’s it for now everyone. All is well and will keep getting better as the days go on. Take care, be well and thanks for reading.

17 comments:

Unknown said...

Nice update budy!! Look forward to seeing you on Sunday!!

Take it easy man.

Steve

Anonymous said...

Go KT!
We'll get you entered in a TNT event soon.
1/2 marathon in San Francisco in July perhaps??
ab

Anonymous said...

Hmmmm Mission Bay!

Anonymous said...

Man, when i lived down there I used to eat Carne Asada Burritos from Robertos! You'll gain 30 lbs back in about 2 weeks! And remember to add extra hot sauce, you won't have any taste buds after that. I should send you my diet plan from when i went to school down there. Great to hear you like your place and gettin out. What a great place it is. Great to hear you are doing well Kurt. Hope you feel better from the nausia soon. take care bud.

tom r

Anonymous said...

Kurt,

Now is the time to try food you never liked before. You might find something that you just love now and couldn't stand before, like Brussel Sprouts or Grueyre cheese.

Say hi to Evey.

Carole

MyCelebPhoto said...

Kurtel,

Great healing update.

I was just outside a few minutes ago wondering how you've been doing. Glad I checked into your blog.

Your location by the bay and ocean sounds amazing.

And yes, if you can hang a trip to Robertos, do it.

Take care.

Gary B.

Anonymous said...

WOW, the place sounds great. We hate to hear that your weight is so low but it's wonderful to hear that you have put 2 lbs on....keep it up. Enjoy Thanksgiving and get a good belly full, that will put it back on.....I know that for a fact!!!

Love Pat and Karan

Anonymous said...

who knew that such little milestones would mean so much? Fantastic!!!! Congratulations - looks like everything is going in the right direction and your place in SD sounds amazing and perfect!! Hello cheeseburger!!

keep enjoying!!

Liz and Billy

Sonia G said...

Hola mi amigo:
Happy to hear that you gained 2 pounds. Congratulations! I can't hardly wait to see your new place on the beach. Sounds awesome. See you on Monday. Love, Sonia

Anonymous said...

nice to hear the good news
so glad 4 U...I bet if you were in Croatia now you would get a lot fatter in a shorter time...with our prsut and sparogi...and all the rest..haha;))

Good luck
Love to you and Evey

Kety

Anonymous said...

Hi Kurt

So glad to hear you're all settled in your new home. Sounds like a great place for you to rest and heal. Our weather has been amazing and I hope it continues for you to get plenty of sun and lots of walks.

Also, your weight gain is great. Hopefully with Thanksgiving around the corner you will continue to gain as most of us do.

We continue to pray that your counts go up and that everything stays on course.

Mr. & Mrs. O

Anonymous said...

So happy to get this update and know you are heading in the right direction. Don always said everything tasted like hockey pucks for a while after his stem cell transplant (as if he chewed on hockey pucks all the time)....but it got better...so be patient and eat!

luv, aunt cherrie

Anonymous said...

Good to hear Kurt..
Happy Thanksgiving to you and Evey..

Tony

Anonymous said...

Hey Kurt,
Here's a cheers to you for being out of the hospital & moving forward to better health just in time for the holidays!! Turkey Day is the perfect opportunity to fatten up!
Happy Thanksgiving to you & Evey!

Love,
TC

Anonymous said...

Kurt - I look forward to reading your updates and glad to hear that in general things are going well. Mission Bay is a beautifull place to recover but I hope you and Evey back home with Floyd on a fulltime basis soon!

Carlos

Just the Sous Chef said...

Sounds like a fabulous place! I am glad you are enjoying it.

Congrats on the 2 lbs, keep eating, keep getting healthy!

Cheers,
Tracy, Rafer and kids.

Anonymous said...

It was so good to see you tonight Kurt. Mike and I love and pray for you. You are a deserving man and we hope for your continuing progress.. Happy Holidays! XOXOXO

-Mike Temling and Kacie Butler

What is Kurt's diagnosis?

AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.

Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.

This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.