Saturday, October 11, 2008

Saturday, October 11th, 2008

Good morning everyone and happy Saturday. Even though I haven't worked in quite some time, Saturday morning for some reason always has a great feeling. I know, I know, it's amazing this is the second message this week. Trying to pick it up from my end.

This week has been a struggle as you could tell from my last message, but I'm happy to say the mucositis has started to subside and I am feeling much better again. I was in the hospital on Friday and all looked good. The culture they took off of my tongue came back negative to there is nothing funky going on there. Kind of expected that but it's always good to hear. I can only hope and pray that my time with mucositis is done.

As I said, I was down in San Diego on Friday. I am actually down there 3 days a week getting my counts checked. By counts I mean blood counts. they look at roughly 60 different measurements in my blood ranging from sodium levels to white and red cells. The main ones I keep track of are WBC (White blood cells), HGB (Hemoglobin) and Platelets.

WBC (White Blood Cells) - Important because they are what enable your body to fight infection. If your white blood cells are low, you're immune system is at risk. A healthy WBC is in the range of 4,000 - 10,000.

HGB (Hemoglobin) - Transports oxygen from the lungs to the rest of the body. One of the reasons I went to the doctor in the first place is because I was getting extremely fatigued when I would exercise. I went from running 7-8 miles at a time to a point where I couldn't even go a mile without stopping. That is because my hemoglobin was pretty much gone. A healthy HGB is in the range of 14 - 17.

Platelets - Allow your blood to clot and scab up when you have a cut. A healthy platelet count is above 140,000.

So these are the big ones I keep track of myself and get tested on three days a week. After chemo, it’s perfectly normal that all of these counts drop to pretty much nothing. The chemo is a poison that throws the baby out with the bath water so everything gets killed. That is why you pretty much feel dead during and after chemo. Here is what my counts looked like this week so you have an example of what I’m talking about:

Monday, Oct 6th:
WBC was 0 so that means no immune system. This is a very dangerous and risky position to be in.
HGB count was 6 so my body was receiving less than half of its normal oxygen supply. Because this number is so low, they infused two bags of blood into my body which drives up the HGB count.
Platelets were 4,000...well below the 140,000 mark. Again, because this number is so low, they infused a bag of platelets into my body as well. All of this is done via IV so it is painless but makes for a long day. There is nothing they can do for WBC except wait for my marrow to wake up and go to work.

Wednesday, Oct 8th:
WBC started to grow and came in at 1,300, so my marrow got to it.
HGB was still very low at 7.7 so I had to get another two bags of blood infused. Platelets were very low again at 12,000 so I again had to get a bag of platelets infused.

Friday, Oct 10th:
WBC grew to 4,700 so things are doing great there. This basically means that I have a normal immune system. Don't worry, chemo and radiation next week will take care of that.
HGB measured at 10.3 which is above the infusion threshold so I didn't have to take any blood.
Platelets were 31,000. This is also above the infusion threshold so I didn't have to take any platelets.

So there you have it. I bet you didn't think you were in store for a science class huh. I wanted to give you an idea of what the key blood markers are I get tested for, what the numbers look like and how they affect me. I am officially in my last week of freedom before I go back to the hospital full time. This next week will be full of poking, prodding and testing so it should be a good one. I'll keep you all updated on how those tests turn out.

Take care everyone and be well.

12 comments:

Anonymous said...

Thinking of you and hoping you are feeling well. Just a quick bit of humor to start off your day.

Carole

Watch for these consolidations in later this year:

1.) Hale Business Systems, Mary Kay Cosmetics, Fuller Brush, and W R. Grace Co.
Will merge and become:

Hale, Mary, Fuller, Grace.

2.) Polygram Records, Warner Bros., and Zesta Crackers join forces and become:

Poly, Warner Cracker.

3.) 3M will merge with Goodyear and become:

MMMGood.

4. Zippo Manufacturing, Audi Motors, Dofasco, and Dakota Mining will merge and
become:

ZipAudiDoDa .

5. FedEx is expected to join its competitor, UPS, and become:

FedUP.

6. Fairchild Electronic s and Honeywell Computers will become:

Fairwell Honeychild.

7. Grey Poupon and Docker Pants are expected to become:

PouponPants.

8. Kn otts Berry Farm and the National Organization of Women will become:

Knott NOW!

And finally...

9. Victoria 's Secret and Smith &Wesson will merge under the new name:

TittyTittyBangBang

Anonymous said...

Handle every stressful situation like a dog.
If you can't eat it or play with it,
Just pee on it and walk away.

Anonymous said...

Kurt-

Good to hear from you twice in a week!

That was a lot of info... I feel like I'm going to have a test on it soon. :-)

Glad to hear you are feeling better.

Unknown said...

Kurt:

Been mostly reading the blog here in the wings. But - thought this was a poignant time to step out and let you know I am still here.

I’ve been doing some business with a woman in London who just told me her husband was diagnosed with AML. She informed me he is currently home after round 3 – waiting for his counts to go up before going back for round 4. I told her of this blog and what a great communication tool it has been. She mentioned how much you and her husband have in common.

I wish you strength and resilience for your upcoming week.

Scott.

Anonymous said...

Well Hello Dr. Von Thallmayer - along with that new career as a sports writer you can add professor/doctor - can't blame you - i would want to know every little detail as well!!! Glad you got through the mouth problem - uggg - i can relate since i've had that sort of break out and imagine me not being able to talk :)

Enjoy these last couple of days - weather is playing out nice for you!!! I know the time must be crawling along at this point, but the end is oh so near!! We're all thinking about ya!!

Love, the Reseigh's

Just the Sous Chef said...

Thanks for taking the time to explain the numbers and glad yours got up there! Enjoy your week at home!

Love,
The Kingston's

Anonymous said...

Actually very much appreciate the science lesson and glad that your numbers are cooperating. Enjoy the rest of this time at home. You are always in our prayers and we look forward to hearing good news from you after next week!

Love, the Gattis family

Andy said...
This comment has been removed by the author.
Anonymous said...

Hi Kurti,

thanks for all the information, it really helps to understand what`s going on, especially with the english descriptions. Hope to see you soon buddy!

Kopf hoch!
Andy

Anonymous said...

How great to see a post from you! And you could be an instructor and charge some coin with the way you explained everything. Never should we take for granted what a powerful element our blood really is.
We check back frequently and are supporting you and Evey each day. Take care!
-Dwana & Ian

Anonymous said...

Before I even stard to read your last poste I must warn you that you must write more often and shorter blogs cause my eyes hurt of all that reading. But anyways happy to hear your doing well and that you're spending a quality time outside the hospital.

talk to you soon
Kety

Annalee said...

Dear Kurt
I have had it on my heart to contact Steve for some time and when I googled him yesterday I found your blog. Wow I am so sorry that you have been so ill but after reading all your entries, I was so inspired by your positive attitude and faith. It's awesome.
I don't know if you remember me, the girl from SA, but anyway, just want you to know that I will be praying for your recovery and strength.
From Annalee

What is Kurt's diagnosis?

AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.

Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.

This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.