Hi everyone and greetings from the hospital. Before I get started, I'd like to explain the date above (Day 0 - 5). Day 0 is the day I am scheduled to get my new immune system via stem cell transplant. They call it day 0 because everything going forward will work off of that day. It makes it much easier for the doctors to work with when communicating with each other because that is obviously the critical day that everything stems from. So Day 0 - 5 means that I will be getting my transplant in 5 days, on Wednesday. For example, 2 days after transplant the date will read Day 0 + 2, or simply + 2. Now onto the message.
I just checked back in today after being home for a few great weeks. I certainly had my ups and downs during that time which I wrote about, but that doesn’t take away from the fact that it was a nice and needed break from the hospital. I spent some quality time with Floyd, had a phenomenal early birthday party (Thanks Marc, Christine and Evey), and was able to spend the last few days in San Diego at a work event. I wasn’t there for work but it was really cool catching up with some old friends and spending time with people I haven’t seen in a while. Well all good things must come to an end and as difficult as it was to walk back through the hospital doors today, I am very eager to get going on the final phase of my treatment. The final phase consists of 2 days of chemo which will be Saturday and Sunday, 3 days of full body radiation which happens twice a day from Monday through Wednesday, then straight to the stem cell transplant on Wednesday night. These 5 days of treatment should pretty much annihilate my immune system to the point where the cells in my bone marrow are completely wiped out. For all intents and purposes, I will have no immune system on Wednesday night which is what you need to go forward with the stem cell transplant.
The stem cell transplant is a very non-invasive procedure for both the donor and me. On the donor side it consists of a lengthy process of taking blood out, filtering that blood for the stem cells it needs, then putting the unused blood back in. This is done over the course of four days for four hours each day. So it’s not necessarily a painful procedure on the donor’s end, but it takes a hell of a long time and is certainly a disruption to his life. For that I will forever be in is debt, even though I have no idea who he is. What I do know is that he is 29 years old, is in very good health and is from Sweden. On my side, the procedure consists of a basic blood transfusion where they pump in the new stem cells via my IV. It’s that simple. The amazing thing is that these stem cells for whatever reason know exactly where to go and what to do as soon as they enter my system. In fact, they should start attaching to my empty marrow inside of 30 minutes.
In my last blog, I gave you a brief understanding of blood counts and what the numbers mean. My counts over the last week and a half have continued to go up and get healthier. Although I haven’t felt the best over the last week or so, my counts are showing that my immune system continues to grow, and that is a great sign of things to come as my body takes to the stem cell transplant. As of right now, my white blood cell count is at 6,500 which means I have an immune system as good as anyone healthy and cancer free. My hemoglobin count is at 9.4 which means there are normal amounts of oxygen being delivered throughout my body. And finally my platelet count is at 127,000 which means all is good from a healing perspective. So with that said, all is good and I can only hope I have the same sort of recovery post transplant. My doctors are very optimistic that all will go very well and this will be a huge success. That was really good to hear from them and as a result, Evey and I are just as optimistic.
That’s it for now everyone. Take care of yourselves, be well and I’ll catch up soon. I will try to write every other day or so depending on how I feel.
Saturday, October 18, 2008
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What is Kurt's diagnosis?
AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
27 comments:
Kurt:
Good luck on Wednesday with the transplant procedure. I will be praying for you. I hope to see you soon. Love, Sonia
May the force be with you, Kurt.
Jill and I will be keeping you in our thoughts, my friend.
Jill and Gary
HI KURT
Mr. O and I are so happy for you that you are finally at this point of the plan. It sounds like all your counts are good and everything is in order for a successful transplant.
You really have a gift on this blog. We appreciate all your informitive information as we think of you daily.
Remember there are so many people praying for you. God is good and he is at your side all the way.
Mr. & Mrs. O
Hi Kurt! An update ..... I'm in SanFran for the big race tomorrow. I just got back from the Team in Training's pasta party 5000 people strong! Our little group of twenty raised $130,000! The total for the event (Nike Women's Marathon) has stretched a little over 18 million for the Leukemia Lymphoma Society! It is unbelievable here! A little too early in the morning I will set out to run my half in a sea of purple shirts! I will be thinking of you every step of the way - You are my inspiration!!!!!
Sending you and Evey much love,
Nadia
hi Kurt
I'm so glad your ok if I can put it that way.
I'll keep you in my thoughts like the rest of Vranjci and can't wait for the next, hopefully good news.
Good luck to you on Wednesday
Love to Evey also
Kety
Kurt,
Good luck in the 0 to 5. I was watching beerfest last night and thought of you. - not sure why. :)
Thanks for the update
Kurt- It has been so great to hear how you have been able to enjoy your time with friends and family. Now, it's back to business..we know you and your doctors will get the job done!
Please know we will be thinking about you all this week and saying our prayers.
Kelli, Doug and kids
Kurt,
all the best from us for the next days.
We are looking forward to seeing you soon,
Daniel
Hi Kurt,
It's good to hear from you. Thank you for the latest update. My thoughts and prayers continue to be with you. Stay strong!
Holly K.
Can't wait to start celebrating Swedish holidays with you!
Aufgehts Kurti,
du packst des!
Pfirti :)
We are thinking of you Kurt.
Good Luck!
Great to see you & Evey last week...ps Happy Birthday
xo- Cathleen & Steve
(& baby Mathes)
Kurt:
Wishing you all the best this week. Thoughts and prayers as always...
Tony
Kurt,
Best of luck to you on Wedenesday. Always in our thoughts and prayers..
Christie, Mike, Madison, Kennedy and Jack Maxwell
Happy Birthday Kurt,
We are all thinking of you here at work and wish you could be with us today.
Hope the hospital at least makes you a cake for your b'day.
Carole L.
Happy Birthday To You.
Happy Birthday To You.
Happy Birthday To Our Friend Kurt..
Happy Birthday To You!!!
Happy bday bro. I think I know what your wish is but I won't tell.
Big Week! You with your transplant us with our Marathon. We'll be thinking about you all week. Keep sending up dates, its crunch time.
alex
Good luck this week Kurt!! I am only one of many sending you their well wishes and prayers for a quick recovery.
Happy Birthday Kurt! Best of luck to you tomorrow. We totally believe in your kick ass mind over matter abilities! And of course we have spoken to God several times and he's on board! See you and Evey soon! Love, Toni & Mike
Hey Kurt:
I haven't wrote in a while, but Van called this past weekend and brought me up to date.
So, you're ready for Day 0! My prayers and best wishes will be with you.
Wood
Kurt, You are closer to the light at the end of the tunnel. Know that we are all praying for a speedy recovery.
Love,
Aunt Cherrie
Happy b-day. Hope you feel better, heard the past few days were tough. I can't even imagine and it makes me sad to hear so. See you this weekend! Tomorrow is the big day....0. Saying prayers and sending many good thoughts your guys way.
Good luck tomorrow Kurt! We'll be thinking of you.
Tom and Jao
Happy Birthday Kurt! Wishing you all the best tomorrow. You are in our thoughts.
Haitham
Hi Kurt,
Best of luck to you tomorrow. I will have you in my thoughts and know you are on the road to recovery!
P.S. - happy b-day to you :)
Kelly D.
hey just worried about you
It's Wednwsday night here in Croatia. I should of guest you didn't write anything yet but hope dies last so...
Please write as soon as you can
I'll be waiting for some news
and that bottle of medenica is still waiting in case you forgot.
Michael send a lot of greatings to Evey and you, as does the rest of my family
Kety
P.S. if your birthay was yesterday as I can read from comments
HAPPY BIRTHDAY AND A LOT OF HAPPINESS AND HELTH
I realy didin't know sorry for being late...
HI KURT,
THE BOYS HAVE KEPT US UP TO DATE AND WE'VE BEEN CHECKING YOUR BLOG.
YOUR POSITIVE ATTITUDE IS INCREDIBLE AND AN INSPIRATION TO MANY OF US. WE ARE THINKING ABOUT YOU, ESPECIALLY DURING THESE NEXT DAYS AND HAVE FAITH IN YOUR DOCTORS' PROGNOSIS.
STAY STRONG -
WE'LL CONTINUE TO PRAY FOR YOU -
LOVE -
PETA
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