Greetings from the outside. I'm happy to be reporting to you again from outside the confines of the hospital walls. It's been a very long week and I'm happy to see it move on. After spending roughly three weeks of possibly the best weeks of my life out of the hospital, I was sent back on last Sunday for what's called consolidation chemotherapy. I was under the impression that this type of treatment was fairly light in comparison to the others I've gone through, but that turned out to be completely wrong. As it goes, consolidation chemo is much stronger than any other type of chemo I had previously been on, including the FLAG chemo which put me in remission. The thought makes sense because you want to hit it with everything you've got to keep you in remission, but it was a difficult week. By far the toughest 5 day stretch I have had since I was pushed down this path, but as I said I am happy to see it gone.
As of now I am recovering at home and will continue to do so until October 17th. At that point I'll check back into the hospital and start the pre transplant treatments of chemo and radiation. The way the plan stands today, I will be undergoing the transplant on October 23rd. From there the story remains the same. 4-5 weeks of recovery in the hospital, we find a place to stay in San Diego for another 4-5 months.
That is pretty much what I have for you al as far as an update goes. Things are moving along and I'm happy to see that donor number 2 looks like it is really going to happen.
I'd like to thank everyone again for donating and taking part in the Light the Night Walk last weekend. I was so happy to be able to make it and see everyone. Your generosity, caring, thoughts, prayers...all of it was really overwhelming and I can't put into words how touched Evey and I were. That day is really what kept my head up last week during the hell I was going through and I have all of you to thank for that.
Take care everyone and go Angels and Cowboys!
Saturday, September 27, 2008
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What is Kurt's diagnosis?
AML is a type of cancer in which the bone marrow makes abnormal myeloblasts (a type of white blood cell), red blood cells, or platelets.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
Adult Acute Myeloid Leukemia (AML) is a cancer of the blood and bone marrow. This type of cancer usually gets worse quickly if it is not treated. It is the most common type of acute leukemia in adults. AML is also called acute myelogenous leukemia, acute myeloblastic leukemia, acute granulocytic leukemia, and acute nonlymphocytic leukemia.
This blog was created to post updates on Kurt and give all of our friends and family a forum to share notes and thoughts. Please check back often for updates.
15 comments:
So glad to hear that things are continuing to look up and that you're out. It looks like you have a few weeks of play time -- hope to see you soon.
Haitham
Kurt,
Good to hear that you are through the consolidation therapy and at home. Make the most of it.
Do you have plans for the Angels post-season games? They better darn well play better than they have in the past 2 days .... yikes!
Carole L.
A joke for you:
An elderly couple were about to get married and were talking about a prenuptal agreement.
She said, "I want to keep my house"
He said, "That's fine with me"
She said, "I want to keep my Mercedes"
He said, "That's fine with me"
She said, "I want sex 6 times a week"
He said, " Put me down for Fridays"
I am SO....glad you guys are back home now!!! I am so fortunate to have seen you both a few times plus Light the Night Walk last weekend...go Chrome Dome. (That was the best b-day ever...and well Yard House was memorable, from what I can remember) I am really sorry the last chemo round was tough. I hope to see you guys soon and I am most definitely visiting when you are living in San Diego. Miss you guys!!!
-tash
Kurt,
thanks for taking the time for lunch. It was great seeing you.
The laughs and great conversation
was exceptional...
talk to you soon...
Todd
Great to hear you're out and feeling better. Things sound good and it must be nice to see something of a ray of sunshine at the end! Tough loss for the Cboy's but I do have to mention the mighty _-cups are 4-0. Romo has a lot to do with that. :) Look forward to seeing you soon! Tell the little lady I said hello!
Steve
San Diego... Superchargers...
Oh, you know the song.
Sorry I missed out on game day at dads but I had to devote all my attention to the Chargers. It worked and we won!
As did the Irish. I attribute that win to the haircut though. :)
Wishing you all the best Kurt.. Glad to hear everything continues to move in the right direction. Fingers crossed on the transplant and happy to hear your out again.
Tony
Hi Kurt,
Sorry to hear it was such a bad week, but happy to hear you came out a champ and are ready for the next round. We are thinking of you and sending lots of high hopes and prayers for a glorious victory!! C you on your b-day!! Toni & Mike :)
Hang in there buddy.. you're nearing the home stretch!
Tom
Kurt-
Good to hear from you again. I'm sure you can't wait until the transplant! Good luck to your Halos in the playoffs.
Hey Kurt and Evey
how are you guys...
so glad to hear you're finally home an enyojing the way that you should... I hope everything goes well with your second donor and that you'll recover very soon after the transplant...
hope you can go travel to see everyone as soon as possible and that you'll come back in Croatia to see us all once again...
we miss you and love you both
best of luck
Kety
P.S. sorry for the misstakes in my comments if there are any(and there probably is)...
hey dude, it's your cousin, andrew. we've been tracking this journey through your blog. i don't know how it works, as far seeing peopel, but Pat and I would love to connect sometime. if it works out for before, certainly after, the transplant - let us know. you can get me at 00bray@gmail.com
blessings to you bro.
drew
Hi Kurt - so happy you are back home and sorry to hear how rough this round of chemo was, yuck!!! Thinking of you! We just arrived home from the Fatherland (what I tease Rafer when I talk about Germany!). We weren't in Bavaria so you didn't miss much but the cool German air did us all some good! :-)
Hugs,
Tracy and family
Hi Kurt,
Just thinking about you and wanted to drop a line to say hi. I hope you're having a blast and enjoying all the sunshine we have been having lately :)
Holly K.
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